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Brain tumours are the biggest cancer killer of people under 40 with an average 5 years survival rate of just 14%. At The Brain Tumour Charity, we are passionate about doubling survival and halving the harm. Join us as we talk to those who have been diagnosed with a brain tumour, their friends, parents, partners and children as we talk about all things brain tumours. Find out more about how we are working to change the outcomes for those who are diagnosed with this terrible disease.
 
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show series
 
We know that whilst Christmas can and often is a great time of year, it can also bring with it some challenges if you are living with a brain tumour or caring for someone who has a tumour. In this episode, Cam, Chandos and Sara share some of the things they have found have helped them cope during the Christmas break. Kate Skinner our Support and In…
 
In this episode we talk to Andy Tudor about how being diagnosed with a meningioma 5 years ago has impacted his life. Andy shares some of the creative solutions to some of the side effects of his tumour that he has come up with since his diagnosis, including how copes at night as he is unable to sleep for long periods of time causing him to wake up …
 
In this episode find out more about how the charity raises money for research into brain tumours and treatments as Chandos talks to Sarah Castleman, Events Manager at the charity. Sarah talks about how we had to change the way we had to do events in the wake of the Coronavirus pandemic, the impact of this and what this means for us as a charity and…
 
In this episode we talk to Kaj Mistry who was just 22 when her dad was diagnosed with a brain tumour. Kaj had moved away from the family home and was just starting her life in a new city when she found out about her dads diagnosis. Kaj decided to move back home to help look after him. Kaj shares her experience of what it was like to walk away from …
 
In this episode Amie Frayne talks about her role as the Volunteer Development Manager and what a vital role volunteers play in just about every aspect of the charity. Amie talks about the types of things volunteers can do at the charity from supporting at events to supporting on our social media channels and much more. You'll also hear from some of…
 
In this episode we hear from Rosie who was diagnosed with a brain tumour when she was just 8 years old. She shares what it was like to be a child going through treatment, how it affected her friendships, going to school and the long term impacts both mentally and physically of having a brain tumour at such a young age. If you would like more inform…
 
In this episode Chandos talks to Optical Engagement Manager Lorcan Butler about the importance of eye exams as these appointments can tell you much more about your overall health than just if you need to wear glasses. Lorcan talks you through what happens at a typical appointment, what your optician looks out for and some of the health conditions, …
 
In this episode, we talk to Diane Thomas about how a loved one's diagnosis changes life for everyone not just the person with the diagnosis and why creating a new 'normal' is so important. Diane talks about problem-solving and finding creative solutions to keep creating a new 'normal' as things changed. Diane also talks about her experiences of hav…
 
In this Spotlight episode Chandos talks to Fiachra Woodman about BRIAN. BRIAN (the Brain tumouR Information and Analysis Network) is an online app which has been developed by The Brain Tumour Charity to help people cope with a brain tumour diagnosis. BRIAN can help you - and those supporting you – to understand how you are doing and to make better …
 
In this episode, we talk to Sunil Reddy about his diagnosis and the impact this has had on his life. Sunil talks about how his memory has been affected due to his treatment and what this has been like for him both coming to terms with the long term effects of having a brain tumour but also how he is finding ways to cope with these changes. Memory l…
 
In this episode Chandos talks to Eve Kelleher, the Head of Services at the charity about some of the ways our Support Team can help people who have been affected by a brain tumour diagnosis. You can find out more about the 10 ways we can help here https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/ They talk about our onli…
 
In this episode co-host Sara Challice shares her story about what it's like being told the person you love has a brain tumour and how her husbands diagnosis changed her life forever as she took on the role of his carer throughout his illness. Sara talks with honesty about the reality of caring, the toll it takes on carers and things she found helpf…
 
In the first of our Spotlight episodes Chandos talks to Emma Wood the Involvement and Impact Manager at The Brain Tumour Charity about Best Care Everywhere, the charity's new stratery to ensure people get the best treatment and care possible wherever they are in the UK. They discuss why the charity is working on this stratergy, how they are doing i…
 
In this episode, you'll meet your hosts Sarah who works at The Brain Tumour Charity, and Cam and Chandy who are both living with a brain tumour diagnosis. They'll be sharing their experience of what it's like to be told you have a brain tumour and what it's like to live with a diagnosis. We'll also be telling you a bit more about what the podcast i…
 
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