Living Rare, Living Stronger: NORD Patient And Family Forum Wait, How Do You Spell That? A Rare Disease podcast

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Wait, How Do You Spell That? A Rare Disease Podcast « »
Living Rare, Living Stronger: NORD Patient and Family Forum

3y ago 26:07

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内容由Patient Worthy提供。所有播客内容（包括剧集、图形和播客描述）均由 Patient Worthy 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品，您可以按照此处概述的流程进行操作https://zh.player.fm/legal。

We sit down with Rebecca Aune and Jack Timperly to talk about the upcoming NORD Patient and Family Forum on June 26 and 27. We discuss what's planned for the event, the annual Rare Impact Awards and why it's important to have rare patients involved in advocacy and educational programs.

To register for the Living Rare, Living Stronger: NORD Patient and Family Forum, click here.

To learn more about NORD, click here.

… continue reading

64集单集

#Fitness #Rare Disease #Patient Worthy

Artwork

Living Rare, Living Stronger: NORD Patient and Family Forum

Wait, How Do You Spell That? A Rare Disease Podcast

published 3y ago

分享

MP3•单集首页

内容由Patient Worthy提供。所有播客内容（包括剧集、图形和播客描述）均由 Patient Worthy 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品，您可以按照此处概述的流程进行操作https://zh.player.fm/legal。

We sit down with Rebecca Aune and Jack Timperly to talk about the upcoming NORD Patient and Family Forum on June 26 and 27. We discuss what's planned for the event, the annual Rare Impact Awards and why it's important to have rare patients involved in advocacy and educational programs.

To register for the Living Rare, Living Stronger: NORD Patient and Family Forum, click here.

To learn more about NORD, click here.

… continue reading

64集单集

#Fitness #Rare Disease #Patient Worthy

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