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Working Toward the Future, Feat. GACI Global and Inozyme Pharma

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Manage episode 342699442 series 2655724
内容由Patient Worthy提供。所有播客内容(包括剧集、图形和播客描述)均由 Patient Worthy 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

On today's episode, we sit down with two of the co-founders of GACI Global, a nonprofit organization centered around families affected by Generalized Arterial Calcification of Infancy. We also speak with the Vice President of Physician and Patient Strategies at Inozyme Pharma, which is pursuing novel therapeutics for the treatment of abnormal mineralization disorders such as GACI. Learn why close cooperation is so important in the development of treatments for rare conditions and why newborn screening is absolutely vital.

Important Links

GACI Global Homepage

GACI Global Worldwide Walk 2022

Inozyme Pharma Homepage

Inozyme Patient Resources

Inozyme Clinical Trial Information

  continue reading

64集单集

Artwork
icon分享
 
Manage episode 342699442 series 2655724
内容由Patient Worthy提供。所有播客内容(包括剧集、图形和播客描述)均由 Patient Worthy 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

On today's episode, we sit down with two of the co-founders of GACI Global, a nonprofit organization centered around families affected by Generalized Arterial Calcification of Infancy. We also speak with the Vice President of Physician and Patient Strategies at Inozyme Pharma, which is pursuing novel therapeutics for the treatment of abnormal mineralization disorders such as GACI. Learn why close cooperation is so important in the development of treatments for rare conditions and why newborn screening is absolutely vital.

Important Links

GACI Global Homepage

GACI Global Worldwide Walk 2022

Inozyme Pharma Homepage

Inozyme Patient Resources

Inozyme Clinical Trial Information

  continue reading

64集单集

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