Rare 公开
[search 0]
更多
Download the App!
show episodes
 
Artwork

1
Rare Earth

BBC Radio 4

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每月+
 
Environmental journalist Tom Heap and physicist Helen Czerski tackle major stories about our environment and wildlife, celebrate the wonder of nature and meet the people determined to keep it wonderful.
  continue reading
 
Artwork

1
RARECast

RARECast

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每周
 
RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
  continue reading
 
Artwork

1
The Rare Life

Madeline Cheney

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每周
 
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
  continue reading
 
Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind.
  continue reading
 
Artwork

1
Rare with Flair

Casey Greer and Cassandra Mendez

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每月+
 
Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
  continue reading
 
Artwork

1
Rare but Real

Audrey Broggi

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每周
 
Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
  continue reading
 
Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
  continue reading
 
Artwork

1
Rare Book Chat

Jeremy O'Connor and Michael DiRuggiero

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每月
 
Dive deep into the fascinating world of rare books with Rare Book Chat. Hosted by Michael DiRuggiero and Jeremy O'Connor, the co-founders of The Manhattan Rare Book Company, this podcast explores the unique and often valuable items that fill the world of rare books, manuscripts, letters, photographs, archives, and more. From historical documents to literary first editions, we'll discuss the stories behind these one-of-a-kind treasures. Join us as we explore the intricacies of the rare book t ...
  continue reading
 
Hello, welcome to A Rare Breed Podcast! My name is Avee (Aw-vee) your host. This show will bring you entertainment and enlightenment. My opinions on topics from politics, social ideology, culture, and more! I try to keep it light, sweet and to the point. I want to give you my juicy take on what is going on in the world and keep the movement of conservative's going strong. The left will not win!
  continue reading
 
Artwork

1
Rare Cuts Media Society

Rare Cuts Media Society

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每月
 
Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
  continue reading
 
Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
  continue reading
 
Artwork

1
Rare Enough

Head for the Cure

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每月
 
The Rare Enough Podcast, hosted by DJ Stewart, a GBM survivor, dives deep into the world of brain cancer awareness, support, and research, inspired by the mission of the Head for the Cure Foundation. Each episode features compelling conversations with patients, caregivers, researchers, and advocates, sharing their unique experiences and insights. We explore a variety of topics, from the latest advancements in brain cancer treatment to personal stories of resilience and hope!
  continue reading
 
I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
  continue reading
 
Welcome to Music to Move You!, the show that moves your feet, moves your body, and moves your soul. We play Rare Soul, Northern Soul, Classic Soul, and other dance genres from the late 1950's to the mid 1970’s. Let’s get you on dance floor! New episodes premiere Tuesdays at 4pm (Central) and replay on Thursdays at 5pm (Central) on www.workingclassradio.com. New episodes are released as a podcast on Fridays. Playlists and extended archives are found at www.mixcloud.com/djmodmyke. Hosted on Ac ...
  continue reading
 
Artwork

1
Rare Aware

Alanna Peck - Engagement at Rare Disorders NZ

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每天+
 
This podcast is dedicated to raising awareness and sharing the voices of people living with rare disorders in New Zealand. Around one in seventeen New Zealanders are affected by a rare condition. For many, finding answers and support can take years. Here, we speak with individuals, families, and experts to help build greater understanding, connection, and support for the rare disorder community. Thank you for listening and for being part of the Rare Aware journey. For more information, visit ...
  continue reading
 
Artwork

1
Patient Empowerment Program: A Rare Disease Podcast

n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每月
 
Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
  continue reading
 
Artwork

1
Raising Rare

Raising Rare

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每月
 
Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...
  continue reading
 
Artwork

1
RareErth Podcast

Manoj Radhakrishna

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每月
 
Ever wonder what makes people take the leap and follow their dreams? That's what RareErth Podcast is all about. I sit down with folks who've turned their passions into careers, asking them the tough questions we all face. How'd they find the courage to start? What keeps them going? Whether it's artists, business owners, or creative thinkers, I'm chatting with people who've taken risks to do what they love. If you're looking for a little inspiration or just enjoy a good story, tune in. Learn ...
  continue reading
 
Artwork
 
Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang telah usai. Support this podcast: https://podcasters.spotify.com/pod/show/heirare/support
  continue reading
 
Artwork

1
It Happened To Me: A Rare Disease and Medical Challenges Podcast

Cathy Gildenhorn, Beth Glassman, and Kira Dineen (DNA Today)

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每月+
 
The mission of our podcast is to support you, our listeners and to create community, as you confront the toughest challenges in life. All of us will experience health hardships. The real question is how we adapt. That is the focus of It Happened To Me, which wants to help you overcome limitations and live a full and satisfying life. Drawing on their own health challenges, hosts Cathy Gildenhorn and Beth Glassman interview guests who share stories and research to help you succeed in the face ...
  continue reading
 
Artwork

1
Rare Treasures

Steph Deague-Hall

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每天+
 
Rare Treasures is a podcast all about rare conditions and disabilities. Each episode will focus on a rare disability or condition. We will gather information and statistics as well as interview people affected by the condition.
  continue reading
 
Artwork

1
Medium Rare

Caleb & Josh

icon
Unsubscribe
icon
icon
Unsubscribe
icon
每月
 
"Medium Rare is a brand-new talk show podcast from the minds behind G33k P0p. Join us every fortnight for discussions of topics that we think are interesting, regardless of if it's what you want to hear"
  continue reading
 
The home of Schwarzenegger Watch Together, the podcast that chronologically critiques the career of actor, bodybuilder, politician and American hero Arnold Schwarzenegger, and other projects
  continue reading
 
Loading …
show series
 
Slakk Legaccy - The Bad Vs the Good with Game’beno legacy RARE LEGACY SHOW IN THE BUILDING. WE HERE FOREVER https://www.podbean.com/pw/pbblog-mjpf3-148dd84 https://youtu.be/aUfHUbPsycY?si=WAVUMBOh7XN1paqa https://open.spotify.com/show/6EfhLE0Giu6WcKnyqYvZVC @highlight Rare Legacy USA Shadid Mickens Robert S Mickens RARE Legaccy Head Banger Studioo …
  continue reading
 
It’s Episode #100, and it feels incredible to finally join the triple-digit club! Huge thanks to Working Class Radio for taking a chance on this show from day one, and to every listener who’s emailed, commented, shared, or danced along with us each week. To celebrate, we’re rewinding all the way back to Episode #1—digging out the very first stack o…
  continue reading
 
We tend to think of wildlife as something which exists in the countryside or in nature reserves, but in fact there are plenty of plants and animals which thrive in an urban environment. In this programme Tom Heap and Helen Czerski explore the species that live alongside us in our towns and cities - finding out what makes a good habitat for them, as…
  continue reading
 
When a family member rejects your disabled or medically complex child, whether through subtle distancing or outright exclusion, it creates a kind of hurt that’s difficult to shake. In this episode, Madeline and Alyssa talk through the many ways that rejection shows up in families: minimizing your child’s needs, ignoring their diagnosis, designing g…
  continue reading
 
Dermatomyositis is a rare multi-organ autoimmune condition that primarily affects the skin and muscles. It causes fatigue, muscle weakness, and painful skin rashes. Treatment for the condition has long centered on the use of chronic systemic steroids, which can carry long‑term toxicity. Priovant is developing brepocitinib, a dual TYK2/JAK1 inhibito…
  continue reading
 
Send us a text In this episode of Rare Connection, Joanna sits down with writer, photographer, paraeducator, and disability advocate Michelle Steiner to talk about life with dyscalculia, an often-misunderstood learning disability that affects number sense and math. Michelle shares her journey from being told she “couldn’t” — couldn’t go to college,…
  continue reading
 
A conversation with Natacha Gassenbach, 2025 Hero of n-Lorem and Biogen leader. She shares Biogen’s decision to become a founding donor of n-Lorem, the impact of the Nano-Rare Patient Colloquium. Natacha also explores “the movement for nano-rare” and a shared vision of tackling difficult challenges to drive meaningful change. Holiday Ornament: http…
  continue reading
 
This week on the podcast, I wrap up discussing the created role of women in the redemptive plan of God and why it matters. I hope this conversation encourages you to live for Him all the days of your life. As we head into December, I want you to know that I read every single one of your emails and messages! I save your questions and I will answer t…
  continue reading
 
In this episode of Let’s Talk Rare, we looked back at P4A’s recent trip to Glasgow, where our colleagues, Sam Morrison & Iro Malekou were on the ground for ISPOR activities leading up to ISPOR 2025. They weren’t just observing—they were actively contributing, presenting a poster abstract, connecting with experts, and taking the pulse of what’s shap…
  continue reading
 
FIGHTER TO SURVIVOR: ASHLEE GAMBINO'S BATTLE BEYOND THE RING In this gripping episode, Ashlee "The Mobwife" Gambino shares her journey from a fierce MMA and professional boxing career to battling idiopathic pulmonary arterial hypertension. Discover how she turned her fighter's mindset into a lifeline, navigating the unimaginable loss of her daughte…
  continue reading
 
Basim Karim is a fighter. He's battled HIV for more than two decades, has had COVID five times, and now has Sarcoidosis in multiple parts of his body. Doctors face a special problem with him because he cannot allow his immune system to be too depressed, or he faces consequences even greater than sarcoidosis. Basim joins me to tell his story. Show N…
  continue reading
 
In this uplifting episode, hosts Beth Glassman and Cathy Gildenhorn sit down with Leanna Scaglione, a powerhouse rare disease advocate and marathon runner living with NF2-Related Schwannomatosis (NF2-SWN), formerly known as neurofibromatosis type 2. Diagnosed at just 16 years old, Leanna’s life changed dramatically when tumors were discovered in he…
  continue reading
 
"My Diary - Please respect it": So wrote the photographer Margaret Bourke-White at the beginning of her hand-written diary. And respect it we do! We cover a lot of ground in this episode exploring diaries, notes, and documents written without an eye to a future audience. Through the diary of a Revolutionary War soldier to the journals of an Apple E…
  continue reading
 
Send us a text Hey guys, sorry it took so long again to get this episode out to you... it has been a struggle. but I do hope you enjoy my ramble session again! I go into one of Tucker Carlson's newest podcast episodes and so much more! again, it is a ramble session so bare with me. I do appreciate everyone's support just by listening to the podcast…
  continue reading
 
Part 2 of The Holiday Season - November/Thanksgiving! This month, Mike brings the 2015 indie drama "Krisha" to the Thanksgiving table—a movie about a woman who reenters her family’s orbit for a tension-filled Thanksgiving after years struggling with addiction. Joined by Andrew, Rob, and Eric, the hosts dig into what makes this micro-budget film bot…
  continue reading
 
Send us a text In this episode, Abraham Gonzales shares his journey through two unimaginable tragedies: losing his wife, Mari, to GBM and surviving the Robb Elementary School tragedy. His story is one of caregiving, heartbreak, and remarkable resilience. Content warning: This episode includes discussion of grief, loss, and traumatic events that may…
  continue reading
 
Loading …

快速参考指南

版权2025 | 隐私政策 | 服务条款 | | 版权
边探索边听这个节目
播放