最佳Mom Amp Dad播客 (2024)

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8 Interview with the author of Fragile X Fragile Hope: Elizabeth Griffin and Her husband. 47:05

1y ago47:05

47:05

Listen to our interview with these two amazing parents. Elizabeth and Jay both Fragile X parents of their son Zach whom has Fragile X. Elizabeth is the author of Fragile X Fragile Hope . Find her book here @ https://www.amazon.com/Fragile-Hope-Finding-Parenting-Special/dp/1932096167/ref=sr_1_1?crid=36K6HTOCW6O8&keywords=fragile+x+fragile+hope&qid=1…

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Interview: Kirsten Fowler New Book Release: Family, Faith & Fragile X 42:45

1+ y ago42:45

42:45

Join us as I interview Kirsten Fowler mom of four children, and author of the book Family, Faith & Fragile X. Kirsten tells us all about what is like to raise three children with Fragile X Syndrome. Why she decided to write her book and share her story. Book can be found @ https://www.amazon.com/Family-Faith-Fragile-Special-Children-ebook/dp/B09ZF1…

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7 Distance Learning or Homeschooling 25:01

3+ y ago25:01

25:01

We decided to ditch Distance learning and go with Homeschooling our kids instead. Listen to how our decision became about.

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6 Dr. Randi Hagerman Special Guest Answering Fragile X Q/A 27:23

3+ y ago27:23

27:23

Dr. Hagerman is medical director of the UC Davis MIND Institute and director of the Fragile X Research and Treatment Center. She has dedicated her life to Fragile X Research with 40 years of working in the Fragile X field. Dr. Hagerman, her husband, Dr. Paul Hagerman, and their research team are the discoverers of Fragile X-associated Tremor/Ataxia…

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5 Communication: AAC device for our nonverbal child. 29:55

4y ago29:55

29:55

Our Son Emmett turned 5 years old in March and he is still consider non-verbal. Emmett probably has less than 5 words in his verbal vocabulary. We have tried several different forms of communication for Emmett. We found that using a AAC device (Augmentative and AAC are tools or technology that help people communicate if they can’t (always) rely on …

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4 Dealing with COVID19: Adapting to the New Crazy Normal. 25:35

4y ago25:35

25:35

Fragile X Dad & Mom Podcast have a very special guest our Fragile X daughter. On this episode 4 we will talk about how we are dealing COVID 19 “Pandemic” and how we are dealing with all the new changes. It has definitely been very difficult but it is not impossible. We are going through the motions just like everyone else. We are adapting to being …

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3 Sharing your child’s diagnosis 34:22

4y ago34:22

34:22

Welcome to Episode 3 with Fragile X Dad and Mom Podcast. Sharing your Child's diagnosis with friends and family and building your support system.After you receive your child's diagnosis you feel so alone, and lost. Sharing your child's diagnosis feels overwhelming and scary. I know that for us it was. We didn't want anyone feeling sorry for us or t…

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2 Expect the Unexpected 35:33

4y ago35:33

35:33

When you are expecting a child you have all these expectations before your child is even born. You can see your unborn child going to college, moving out to their own place, getting married, and even having a family one day. All those expectations change when your child gets diagnosed with a disability. Your expectations switch so drastically, and …

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1 Intro Welcome to our special needs journey with Fragile X Dad & Mom Podcast! 39:25

4y ago39:25

39:25

Hi there! We figure it out! How to podcast? Yeay! On our Intro Episode 1 you will get to know a little about ourselves our family, and what brought us to start this podcast. You will also hear about "THE DIAGNOSIS" of both of our kids. Juan aka(Fragile X Dad), and Erika (Fragile X mom) want to offer you a place to unwind and not feel alone on this …