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welcome to almost, nearly--a little town in my brain that has all kinds of abandoned cities of thought, weird street names and strange ghosts that walk the sidewalk Support this podcast: https://podcasters.spotify.com/pod/show/maryam-vega/support
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Having had alopecia areata since the age of two, Lindsey Sullivan is very nearly almost bald or very nearly almost has a full head of hair. It all depends on how you look at it. Everyone has that thing about them that they have had to learn to love--perhaps they're still struggling with it. Through snippets of her own story and interviews with inspiring guests, Lindsey explores the ups and downs of alopecia areata--and other secret super powers.
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In this episode, Lindsey interviews award-winning journalist, menopause advocate, filmmaker and content creator Tamsen Fadal. She is a co-producer on the documentary The M Factor: Shedding the Silence on Menopause, set to premiere on PBS on October 17 ahead of World Menopause Day on October 18. In March, she will publish her newest book How to Meno…
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In this solo episode, Lindsey opens up about her history with alopecia treatment, the over-a-decade pause she took and coming back to it in the form of taking the JAK inhibitor Lifulo by Pfizer. She also discusses the healing process of penning a piece in The Cut about recalibrating her identity as a woman pursuing treatment for her hair loss.…
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In this episode, Lindsey takes you inside the 2024 National Alopecia Areata Foundation conference. It took place this past June in Washington, D.C. The D.C. setting is an important one for alopecia advocacy work. As listeners know all too well, it’s an election year. It feels like government and public policy are at the forefront of minds and memes…
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Happy Alopecia Awareness month! In this episode, Lindsey interviews Simon Rubenstein. He’s the youngest board member on the National Alopecia Areata Foundation Board of Directors. He's also a film director, a producer, a writer, a photographer, a multicam operator, a community organizer and a business entrepreneur. They discuss the importance of em…
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In this episode, Lindsey is combining her passions for theater, hair and self-image in a conversation with 2024 Tony honoree Nikiya Mathis. The ultimate multi-hyphenate, Nikiya is a classically trained actress with an MFA in Acting from NYU's Tisch School of the Arts as well as a wig and hair designer who has lent her talents to shows like Chicken …
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In this episode, Lindsey has the opportunity to combine her passions for theater and connecting with others via Very Nearly Almosts. She spoke with Becca Schneider. Her solo show TRICH, which chronicles her experience with trichotillomania, was the top-selling play at the 2021 United Solo Theatre Festival at Theatre Row in NYC, winning both the Bes…
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In this episode, Lindsey speaks with Joyel Crawford. She is a TEDx speaker and the best-selling author of Show Your Ask! She is also the CEO and Founder of Crawford Leadership Strategies and the host of the Career View Mirror podcast. The ladies discuss Joyel's alopecia journey and how she's turned her own process of sharing her shine into a practi…
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Happy Alopecia Awareness Month! Lindsey kicks it off with Morgan a.k.a. Bald Baddie. Though she strikes a power pose like no other and has amassed nearly 30,000 followers, she--like many!--had a hard time dealing with bullying when she first lost her hair at age 16. Morgan talks about honing her confidence and how those painful experiences drove he…
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Meredith Lesley is back to open up about the latest chapter of her weight loss journey: having surgery to get her extra skin removed! After experiencing a tummy tuck as well as breast and arm lifts, she is here to offer perspective on an often stigmatized part of the weight loss process. Plus, she and Lindsey talk about the problem with insurance a…
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In this episode, Lindsey speaks with Devin Tomb regarding her hair loss and ultimate regrowth journey. They dive into her Hearst-nominated essay, "As 100,000 Strands Fell," which she wrote for Good Housekeeping in 2017. She looks back on losing her hair, dating as a bald woman and regrowing her hair completely using JAK inhibitors.…
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In this episode, Lindsey speaks with award-winning director and writer Rachel Fleit, who most recently directed BAMA RUSH about sorority women at the University of Alabama. In the documentary, Fleit turns the camera on herself and addresses her lifelong journey with alopecia. Lindsey and Rachel take a deeper dive into that journey, her intentions f…
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Lindsey's back with a vulnerable update and an exciting inside look at her very first NAAF Conference in Denver, Colorado! The National Alopecia Areata Foundation has an annual conference for those with alopecia and their supporters. Hear from first-time attendees and returners about what it's like to spend an entire weekend with people who truly u…
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In this episode, Lindsey speaks with Elizabeth "Ellie" Haney, the founder of Hanesie, a clothing company that promotes mental health awareness. Though they are both from the same picture perfect Connecticut town, she chronicles her journey with anxiety. From not being able to get out of bed in college to feeling fueled by creating clothing, Haney n…
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In this episode, Lindsey speaks with Rachel Estabrook, who opens up about the skin insecurities she had growing up and how they ultimately led her on a path of becoming a professional makeup artist. She gets candid about how her definition of "beauty" has changed throughout her life.由Lindsey Sullivan
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In this episode, Lindsey speaks with Marie-Blanche Castagne, a college student from France, about navigating alopecia areata from an early age. From dating to now cutting her friends' hair, she dishes on what it's really like to be a college lady with hair loss. Plus, she shares the best wig tips!由Lindsey Sullivan
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In this episode, Lindsey speaks with Amara Aleman, who her Instagram and TikTok followers know as Amara ArtSpots. Following a vitiligo diagnosis back in 2017, Amara hid her body away, staying home and covering up with makeup and long sleeves. Here, she and Lindsey discuss using self-care to reclaim one's identity, building a support system and taki…
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In this episode, actor Jillian Sayegh joins Lindsey for a conversation about the struggles she's experienced accepting her curly hair and paving a professional and personal path that refuses to be built on people pleasing. Sayegh has appeared on Gotham and most recently, in Bruce Springsteen's music video for "Nightshift." She's done print work for…
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In this episode, Lindsey speaks with Julie Yoo, a fellow co-founder of the Alopecia Justice League. She has two daughters with alopecia and details her family's journey in navigating their hair loss. Plus, Julie shares her own story of having doors opened for her and why those experiences have shaped her into the advocate she is today.…
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The teen years can be some of the toughest to face having alopecia, but Alison Lee has taken her story of self-love and turned it into a mission to advocate for others. In this episode, Lindsey speaks with the 16-year-old about co-founding the Alopecia Justice League together, her early alopecia days and even the alopecia rom-com she wrote.…
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In this episode, Lindsey gabs with her alopecia pal Anja Bandulj. She shares the story of discovering she had alopecia on the evening of her junior prom and chronicles the emotional process behind deciding to eventually shave her head. She and Lindsey talk in-depth about the fluctuation of acceptance with their alopecia.…
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National Alopecia Areata Foundation support group leaders unite in this latest episode! Lindsey speaks with New Jersey leader Lasandra Johnson about her unexpected hair loss journey, hitting rock bottom and coming out of it triumphant and flourishing with self love. Johnson discusses the process of getting her mother to understand and accept her al…
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In this episode, Lindsey speaks with Abby Andrew, who uses her incredible YouTube channel and sizeable social media following to express herself, offer insight about alopecia and rock some truly gorgeous wigs. The ladies spoke about discovering their alopecia at an early age as well as their respective emotional turning points in their journeys of …
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It would be untrue and frankly harmful not to point out that there are numerous factors at play with the situation that happened between Chris Rock and Will Smith at the 2022 Oscars. In this bonus episode, host Lindsey Sullivan is joined by previous VNA guests Supriya Surender and Suhani Parikh to take a deep dive into the alopecia side of the stor…
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In this episode, Lindsey Sullivan speaks with Ozzie Martinez about his alopecia journey. In this the first VNA sit-down with a dude, he provides insight about why the condition can be so difficult for men to experience--especially in a world where the harmful general narrative is that only women must worry about their appearances. In addition, they…
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Suhani Parikh is a mother of three and the founder of Modern Marigold Books. In this two-part episode, she and Lindsey discuss her alopecia journey and how it inspired her book Shreya's Very Own Style. Children's books are powerful ways to teach kids values and acceptance of others. This episode is full of advice and resources for both parents and …
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Velena Jones is a reporter for CBS Sacramento. In her early 20s, a mysterious illness and the medications it called for caused her hair to fall out. Here, she and host Lindsey Sullivan discuss navigating her identity as as not only a Black woman but as an on-camera journalist during that tumultuous time and how she's arrived at a place of acceptanc…
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Alopecia is not the topic at hand in this holiday bonus episode of Very Nearly Almost. Meredith Lesley opens up about her weight loss journey and the moment she felt called to become a certified personal trainer and inspire others to map out what wellness means for them. Plus, Meredith shares her tips for navigating holiday time, when negative self…
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Lindsey sits down with Lily Hakim to talk about her early alopecia diagnosis, the restricted diet she grew up with as a result and even being mistaken as a boy by a teacher growing up. Lily is now the Director of Executive Operations at Pfizer. She shares about struggling with autonomy as a young alopecia patient who could not make an informed deci…
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In this week's episode, Lindsey sits down with Darlenys Rosa. She graced the pages of Allure this past September to share her story and her shine for Alopecia Awareness month. Darlenys speaks in-depth with Lindsey about the bullying they both experienced growing up and how far she has come in embracing her baldness and speaking to herself move posi…
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Alopecia isn't just hard for those facing it; it can also be hard to navigate for those in their support systems. In this week's episode, Lindsey sits down with her mom and dad for a conversation about becoming first-time parents to a daughter with alopecia areata and supporting her to become the strong, beautiful, podcast-hosting, pug-enthusiast w…
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Lindsey loves when people ask her how she met her friend Katherine Sarci-Tucker. In this episode, Lindsey and Katherine discuss how their very different alopecia journeys brought them together. Katherine opens up about how alopecia's unwelcome return to her life brought her closer to her support systems, choosing to pursue treatment and how far she…
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The latest interview episode starts not with a question, but with a story. For years, Nicole Arzoomanian and Lindsey Sullivan thought the friendship circles they ran in were the only thing they had in common. In this sit-down, the ladies talk about their respective alopecia journeys. Plus, Arzoomanian shares where she purchased her superwoman wig a…
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Dominique Claire is a coach, blogger, dancer and so much more. In this week's episode, she opens up to Lindsey about being called an "alien" as a kid, growing up with an identical twin who doesn't have alopecia areata, her relationship with her husband and the baby they have on the way. They also talk about the differences between living with alope…
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Supriya Surender a.k.a. Baldie Boo joins Lindsey to talk about her journey from suddenly losing her hair at age 32 to completely dreading her 35th birthday to becoming a beacon of light and positivity for the alopecia community. Supriya discusses the treatments she initially tried, why she decided to stop treating her alopecia, opening up to her bo…
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Hair loss doctor Kristen Lo Sicco joins Lindsey for Very Nearly Almost's very first interview episode. In this one, hair loss gets broken down to basics. But there's nothing basic about this interview. This is an amazing episode for those newly diagnosed with alopecia, those who may want to know about the latest treatments available, where to go fo…
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Lindsey Sullivan very nearly almost has a full head of hair. Or she's very nearly almost bald. It all depends on how you look at it. The New York-based writer, content producer and National Alopecia Areata Foundation support group leader shares her story about being diagnosed with alopecia areata at age two. In this podcast, she chronicles her expe…
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