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Katerina’s Story: Living Life from a New Perspective
Manage episode 317950961 series 2980048
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Katerina’s CMT symptoms seemed to materialize overnight. As a senior in high school, she went from being active and carefree to living with inexplicable pain and fatigue. Many docs chalked up her complaints to depression, stress, anxiety until, one day, she tested positive for a recessive type of CMT (CMTRIC), as did her three siblings. The odds of all 4 siblings having a recessive type of CMT is 1 in 250!
Today, 21-year-old Katerina is a college student who shares her experiences through her blog, Beauty in the Pain. Even with her chronic illness and limitations, Katerina continues to serve others through seated dance, sharing her CMT story and encouraging others to live the best life possible, despite constraints.
CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal is to spread CMT awareness and unite as a community. We will also cover research updates, fundraising, unique stories, interviews with the CMTA community, including board members, branch leaders, and CMTA team members. Have a story you’d like to share? Write to info@cmtausa.org. You may be our next guest on the new CMT 4 ME podcast! For more information on the CMTA, please visit our website: cmtausa.org
For more information about CMT and to support the CMTA, please visit www.cmtausa.org
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