Artwork

内容由PWSA | USA提供。所有播客内容(包括剧集、图形和播客描述)均由 PWSA | USA 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
Player FM -播客应用
使用Player FM应用程序离线!

Pulse 108: Prepare for Holidays, New Staff, Operation Holiday Cheer, & More

45:10
 
分享
 

Manage episode 444207074 series 3594946
内容由PWSA | USA提供。所有播客内容(包括剧集、图形和播客描述)均由 PWSA | USA 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

The latest in PWSA news, research, fundraising, family support, advocacy, and more. Be sure to check out the links!

LINKS

Our Staff - Prader-Willi Syndrome Association | USA (pwsausa.org)

Halloween Fun for Everyone - Prader-Willi Syndrome Association | USA (pwsausa.org)

Celebrate Thanksgiving Safely - Prader-Willi Syndrome Association | USA (pwsausa.org)

Celebrate Holidays Safely - Prader-Willi Syndrome Association | USA (pwsausa.org)

Share Your Halloween Tips and Tricks for PWSA | USA's PWS United Podcast - Prader-Willi Syndrome Association | USA (pwsausa.org)

Hope for the Holidays - Prader-Willi Syndrome Association | USA (pwsausa.org)

Share Your Story - Prader-Willi Syndrome Association | USA (pwsausa.org)

Arizona Grand Resort & Spa - Reservations - Room Availability Search (synxis.com)

Home - 2025 United in Hope PWS Conference (cventevents.com)

2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA (pwsausa.org)

Inaugural RMC Foundation Golf Outing: Jen Garzia Speech (youtube.com)

Dance Silly for Prader Willi T-Shirt - Prader-Willi Syndrome Association | USA (pwsausa.org)

Events from October 11 – June 24, 2025 – Prader-Willi Syndrome Association | USA (pwsausa.org)

New England Prader Willi Conference Tickets, Sat, Nov 2, 2024 at 8:30 AM | Eventbrite

The Many Factors of Independence - Prader-Willi Syndrome Association | USA (pwsausa.org)

Spreading Joy: Operation Holiday Cheer Returns to Support PWS Families in 2024 - Prader-Willi Syndrome Association | USA (pwsausa.org)

Ask Nurse Lynn: Bowel Movements and Picking - Prader-Willi Syndrome Association | USA (pwsausa.org)

TREND Webinar Registration - Zoom

Update on Phase 3 COMPASS PWS Study from Acadia - Prader-Willi Syndrome Association | USA (pwsausa.org)

Project Echo - Prader-Willi Syndrome Association | USA (pwsausa.org)

Prader-Willi Syndrome Association - YouTube

africke@pwsausa.org

  continue reading

11集单集

Artwork
icon分享
 
Manage episode 444207074 series 3594946
内容由PWSA | USA提供。所有播客内容(包括剧集、图形和播客描述)均由 PWSA | USA 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

The latest in PWSA news, research, fundraising, family support, advocacy, and more. Be sure to check out the links!

LINKS

Our Staff - Prader-Willi Syndrome Association | USA (pwsausa.org)

Halloween Fun for Everyone - Prader-Willi Syndrome Association | USA (pwsausa.org)

Celebrate Thanksgiving Safely - Prader-Willi Syndrome Association | USA (pwsausa.org)

Celebrate Holidays Safely - Prader-Willi Syndrome Association | USA (pwsausa.org)

Share Your Halloween Tips and Tricks for PWSA | USA's PWS United Podcast - Prader-Willi Syndrome Association | USA (pwsausa.org)

Hope for the Holidays - Prader-Willi Syndrome Association | USA (pwsausa.org)

Share Your Story - Prader-Willi Syndrome Association | USA (pwsausa.org)

Arizona Grand Resort & Spa - Reservations - Room Availability Search (synxis.com)

Home - 2025 United in Hope PWS Conference (cventevents.com)

2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA (pwsausa.org)

Inaugural RMC Foundation Golf Outing: Jen Garzia Speech (youtube.com)

Dance Silly for Prader Willi T-Shirt - Prader-Willi Syndrome Association | USA (pwsausa.org)

Events from October 11 – June 24, 2025 – Prader-Willi Syndrome Association | USA (pwsausa.org)

New England Prader Willi Conference Tickets, Sat, Nov 2, 2024 at 8:30 AM | Eventbrite

The Many Factors of Independence - Prader-Willi Syndrome Association | USA (pwsausa.org)

Spreading Joy: Operation Holiday Cheer Returns to Support PWS Families in 2024 - Prader-Willi Syndrome Association | USA (pwsausa.org)

Ask Nurse Lynn: Bowel Movements and Picking - Prader-Willi Syndrome Association | USA (pwsausa.org)

TREND Webinar Registration - Zoom

Update on Phase 3 COMPASS PWS Study from Acadia - Prader-Willi Syndrome Association | USA (pwsausa.org)

Project Echo - Prader-Willi Syndrome Association | USA (pwsausa.org)

Prader-Willi Syndrome Association - YouTube

africke@pwsausa.org

  continue reading

11集单集

所有剧集

×
 
Loading …

欢迎使用Player FM

Player FM正在网上搜索高质量的播客,以便您现在享受。它是最好的播客应用程序,适用于安卓、iPhone和网络。注册以跨设备同步订阅。

 

快速参考指南