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内容由Catalyst Pharmaceuticals, Inc. and Catalyst Pharmaceuticals提供。所有播客内容(包括剧集、图形和播客描述)均由 Catalyst Pharmaceuticals, Inc. and Catalyst Pharmaceuticals 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
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Don't Let Your Diagnosis Define You

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Manage episode 415747536 series 3313855
内容由Catalyst Pharmaceuticals, Inc. and Catalyst Pharmaceuticals提供。所有播客内容(包括剧集、图形和播客描述)均由 Catalyst Pharmaceuticals, Inc. and Catalyst Pharmaceuticals 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

On this episode of the LEMS Aware podcast, we are joined by Karyn. Karyn first started feeling her symptoms of LEMS 24 years ago, but wasn’t diagnosed until 2013. Living with her disease for almost 12 years before receiving her diagnosis helped her adapt to life in new ways, become more comfortable in her condition and gave her time to accept that a new normal is okay. Karyn’s frequent moves throughout her life, as well as her career as a social worker, enabled her to see her abilities and how they have changed as part of her life but not what defined her life.

LEMSaware.com was created to deliver relevant information, resources, and connections to patients and caregivers who may be dealing with LEMS.  Wherever you are on your journey-searching for the right doctor, the right diagnosis, or the right treatment-this site can guide you to that next milestone. 

  continue reading

11集单集

Artwork
icon分享
 
Manage episode 415747536 series 3313855
内容由Catalyst Pharmaceuticals, Inc. and Catalyst Pharmaceuticals提供。所有播客内容(包括剧集、图形和播客描述)均由 Catalyst Pharmaceuticals, Inc. and Catalyst Pharmaceuticals 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

On this episode of the LEMS Aware podcast, we are joined by Karyn. Karyn first started feeling her symptoms of LEMS 24 years ago, but wasn’t diagnosed until 2013. Living with her disease for almost 12 years before receiving her diagnosis helped her adapt to life in new ways, become more comfortable in her condition and gave her time to accept that a new normal is okay. Karyn’s frequent moves throughout her life, as well as her career as a social worker, enabled her to see her abilities and how they have changed as part of her life but not what defined her life.

LEMSaware.com was created to deliver relevant information, resources, and connections to patients and caregivers who may be dealing with LEMS.  Wherever you are on your journey-searching for the right doctor, the right diagnosis, or the right treatment-this site can guide you to that next milestone. 

  continue reading

11集单集

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