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All about Lichen Sclerosus, Knowing Your Anatomy, Advocating for Proper Care, and Empowerment with Jaclyn Lanthier from Lost Labia Chronicles
Manage episode 430840828 series 3542684
内容由Dr. Sameena Rahman提供。所有播客内容（包括剧集、图形和播客描述）均由 Dr. Sameena Rahman 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品，您可以按照此处概述的流程进行操作https://zh.player.fm/legal。
Do you ever wish there were more resources and support for managing your sexual health condition?
Well, that's exactly what our latest guest, Jaclyn Lanthier, provides. Jaclyn is a dedicated advocate and educational resource for individuals with lichen sclerosus, and she's here to share her wealth of knowledge and personal journey.
Jaclyn offers a free 100+ page ebook supported by over 40 peer-reviewed journal articles that are constantly updated. Covering topics from sexual health to mental health and building a support team, her work is an essential resource for those managing lichen sclerosus.
Jaclyn is also a powerhouse for the Lichen Sclerosus Support Network, producing a variety of content, ranging from blogs and YouTube videos to webinars and virtual meetups. She conducts in-person support groups, webinars, and even educates healthcare providers, bridging critical gaps in patient support and professional understanding.
Transforming her own challenging experiences into advocacy, Jaclyn emphasizes the importance of tools for condition management, mental health prioritization, and finding the right healthcare providers. Her story and advice are especially poignant, given her past struggles with misdiagnoses and the healthcare system, a common theme in our discussions on medical gaslighting and the need for compassion in care.
Jaclyn's initiative, The Lost Labia Chronicles, exemplifies her dedication to education. Through blogs, videos, speaking events, and multiple media forms, she ensures everyone can access and understand this crucial information.
Highlights:
- Jaclyn's Journey with lichen sclerosus: Facing years of misdiagnoses and trialing through inadequate care, Jaclyn transforms her personal hardships into robust advocacy efforts.
- Tackling Health Anxiety: Hear Jaclyn's advice for avoiding overwhelming research, focusing on treatment and mental health, and managing symptoms with confidence.
- Empowerment through Education: Jaclyn stresses the necessity of educating oneself about conditions like lichen sclerosus and finding the right healthcare providers equipped to offer proper care.
- The Lost Labia Chronicles: Gain insight into this initiative, demonstrating the power of storytelling and education in transforming patient care.
- Overcoming Healthcare Barriers: Jaclyn shares actionable advice based on her own experiences, emphasizing the need for proper diagnosis, appropriate medication use, and comprehensive understanding from healthcare providers.
Remember, awareness and education are the first steps to advocacy and better healthcare. Tune in for more insights on reproductive health and leave us a review on Apple Podcasts!
Guest Bio:
Jaclyn is a vulvar lichen sclerosus patient advocate from Toronto, Canada. Jaclyn is the founder and director of The Lost Labia Chronicles, an evidence-based knowledge-sharing hub for vulvar lichen sclerosus information and support.
She is on the executive board of Lichen Sclerosus Network, a non-profit organization based in the USA.
She is currently enrolled in the EUPATI patient expert training program to improve her skills in patient advocacy. Jaclyn did her Ph.D. in philosophy of neuroscience at the Western University, in London, Ontario, where she evaluated the scientific methods and protocols used in cognitive neuroscience research to assess the reliability of the findings and ensure that the conclusions drawn from these studies are credible and trustworthy.
Jaclyn is passionate about science communication, knowledge translation, and improving the quality of life of people with VLS through education and support.
Get in Touch with Jaclyn:
Get in Touch with Dr. Rahman:
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