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Kristen St. John
Manage episode 377784197 series 2295478
Kristen St. John, whose daughter Marcie was diagnosed with Vascular Ehlers-Danlos Syndrome, or VEDS, shares her and Marcie’s experience with diagnosis and life with VEDS, including a bowel perforation that Marcie had at 4 years old.
Find more information about VEDS, including support groups and medical webinars, at thevedsmovement.org
If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit
https://calendly.com/d/z7h-2cc-g33
Links mentioned in the episode:
Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation programming announcement:
https://marfan.org/2023/08/21/announcing-2023-2024-foundation-programs/
Join a Walk for Victory:
VEDS Zebra Group on Facebook:
https://www.facebook.com/groups/352286631530771
Support
You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone
Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:
Jon Holtom
Adventuresinlove4Andie
Ashton Tanner
Ryan Rodarmer
Benjamin Weisman
Disclaimer
The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.
Disclaimer
The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.
108集单集
Manage episode 377784197 series 2295478
Kristen St. John, whose daughter Marcie was diagnosed with Vascular Ehlers-Danlos Syndrome, or VEDS, shares her and Marcie’s experience with diagnosis and life with VEDS, including a bowel perforation that Marcie had at 4 years old.
Find more information about VEDS, including support groups and medical webinars, at thevedsmovement.org
If you would like to share your story with VEDS, Marfan, Loeys-Dietz, or a similar condition on this podcast, visit
https://calendly.com/d/z7h-2cc-g33
Links mentioned in the episode:
Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation programming announcement:
https://marfan.org/2023/08/21/announcing-2023-2024-foundation-programs/
Join a Walk for Victory:
VEDS Zebra Group on Facebook:
https://www.facebook.com/groups/352286631530771
Support
You can support this podcast by subscribing to my Patreon at https://www.patreon.com/Translucentone
Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:
Jon Holtom
Adventuresinlove4Andie
Ashton Tanner
Ryan Rodarmer
Benjamin Weisman
Disclaimer
The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.
Disclaimer
The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.
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