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内容由Alicia Barron and Robin Kingham, Alicia Barron, and Robin Kingham提供。所有播客内容(包括剧集、图形和播客描述)均由 Alicia Barron and Robin Kingham, Alicia Barron, and Robin Kingham 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
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Meet Aaron B.!

41:27
 
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Manage episode 376810281 series 3373390
内容由Alicia Barron and Robin Kingham, Alicia Barron, and Robin Kingham提供。所有播客内容(包括剧集、图形和播客描述)均由 Alicia Barron and Robin Kingham, Alicia Barron, and Robin Kingham 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

Send us a text

This week we spoke to IBD and Rare Disease advocate, Aaron Blocker! Aaron lives with Crohn's disease as well as an ultra-rare disease called Hypophosphatasia. We talked to him about managing both illnesses and coordinating his care. We talked to him about how he set up his very popular and informative Facebook community called Support for Crohn's & Ulcerative Colitis and how he monitors this page to keep the conversations informative, supportive, and as accurate as possible. We also talked to him about his degree in biomedical research and how he uses it to help translate complicated scientific information for the patient population and to help educate our community. Additionally this has helped him engage with the pharmaceutical and scientific community professionally to help with patient education, marketing and much more. Finally we talked to him about parenting his three very small children, including twin babies (!), while living with two chronic illnesses.
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;)
Links:

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!

  continue reading

章节

1. Meet Aaron B.! (00:00:00)

2. [Ad] When We Die Talks (00:11:42)

3. (Cont.) Meet Aaron B.! (00:12:23)

123集单集

Artwork

Meet Aaron B.!

Bowel Moments

published

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Manage episode 376810281 series 3373390
内容由Alicia Barron and Robin Kingham, Alicia Barron, and Robin Kingham提供。所有播客内容(包括剧集、图形和播客描述)均由 Alicia Barron and Robin Kingham, Alicia Barron, and Robin Kingham 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

Send us a text

This week we spoke to IBD and Rare Disease advocate, Aaron Blocker! Aaron lives with Crohn's disease as well as an ultra-rare disease called Hypophosphatasia. We talked to him about managing both illnesses and coordinating his care. We talked to him about how he set up his very popular and informative Facebook community called Support for Crohn's & Ulcerative Colitis and how he monitors this page to keep the conversations informative, supportive, and as accurate as possible. We also talked to him about his degree in biomedical research and how he uses it to help translate complicated scientific information for the patient population and to help educate our community. Additionally this has helped him engage with the pharmaceutical and scientific community professionally to help with patient education, marketing and much more. Finally we talked to him about parenting his three very small children, including twin babies (!), while living with two chronic illnesses.
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;)
Links:

Let's get social!!
Follow us on Instagram!
Follow us on Facebook!
Follow us on Twitter!

  continue reading

章节

1. Meet Aaron B.! (00:00:00)

2. [Ad] When We Die Talks (00:11:42)

3. (Cont.) Meet Aaron B.! (00:12:23)

123集单集

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