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4: Life with homocystinuria (HCU): Colbie, Cayle and parents Cole and Sarah
Manage episode 314776173 series 2989272
内容由Caring for Rare: Stories of Rare Metabolic Disorders and Nutricia North America提供。所有播客内容（包括剧集、图形和播客描述）均由 Caring for Rare: Stories of Rare Metabolic Disorders and Nutricia North America 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品，您可以按照此处概述的流程进行操作https://zh.player.fm/legal。
Siblings Colbie (11) and Cayle (9) were diagnosed with homocystinuria (HCU), a rare inborn error of metabolism, when they were young children. With their parents Cole and Sarah, they share their feelings on HCU. Cole and Sarah talk about the early days of adjusting to diet management and their journey to accepting HCU and focusing on all that Colbie and Cayle can do.
This episode was produced by Alletta Cooper, Ulrike Reichert, and Kate Miley for Nutricia North America. The music featured in this episode is Look Inside by Sirus Music, Endless Story by Nick Petrov, and Everything's OK by Porter Productions.
Contact us at NutritionServices@nutricia.com or NutriciaMetabolics.com
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