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内容由Shelby Lentz提供。所有播客内容(包括剧集、图形和播客描述)均由 Shelby Lentz 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
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There is Still Life Left to Live with Juvenile Huntington's Disease - Londen and Autumn Tabor

2:10:40
 
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Manage episode 298114277 series 2922328
内容由Shelby Lentz提供。所有播客内容(包括剧集、图形和播客描述)均由 Shelby Lentz 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.
Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease. Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Huntington's--an already incredible rare disease. Any way that they can find to spread awareness: they do. They never stop fighting. Londen and Autumn have an impressive 75,000+ viewers on their joint TikTok account where they speak about life with JHD and work to both educate and reform thought on JHD.
I hope you enjoy our conversation.
Follow Londen and Autumn:

https://www.instagram.com/londenandautumn/

https://www.tiktok.com/@londenandautumn?lang=en
Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/

Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks

Support the show (https://www.championsforhd.org/donate)

Support the show

  continue reading

31集单集

Artwork
icon分享
 
Manage episode 298114277 series 2922328
内容由Shelby Lentz提供。所有播客内容(包括剧集、图形和播客描述)均由 Shelby Lentz 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.
Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease. Before editing, this was a 3 hour conversation! We had so much fun. We laughed, we cried, but most of all they were so open and vulnerable. JHD is an even rarer form of Huntington's--an already incredible rare disease. Any way that they can find to spread awareness: they do. They never stop fighting. Londen and Autumn have an impressive 75,000+ viewers on their joint TikTok account where they speak about life with JHD and work to both educate and reform thought on JHD.
I hope you enjoy our conversation.
Follow Londen and Autumn:

https://www.instagram.com/londenandautumn/

https://www.tiktok.com/@londenandautumn?lang=en
Follow Champions:

https://www.championsforhd.org/

https://www.instagram.com/championsforhd/

https://www.facebook.com/championsforhd/

Follow Shelby:

https://www.instagram.com/shelby_lentz/

https://www.shelbylentz.com/

https://www.facebook.com/shelbylentzmusic/?ref=bookmarks

Support the show (https://www.championsforhd.org/donate)

Support the show

  continue reading

31集单集

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