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Infantile Spasms

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Manage episode 292784753 series 1755823
内容由I am a Health Visitor and Amy and Jenny提供。所有播客内容(包括剧集、图形和播客描述)均由 I am a Health Visitor and Amy and Jenny 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
Small seizures with big consequences. Infantile spasms or 'west syndrome' is a devastating diagnosis for any family and can so easily be missed. Listen to Jen and Amy discuss the health visitors role in supporting the family with identification of this tricky and subtle disorder as well as being alongside them through diagnosis, treatment and supporting the development of the child as they grow. For comments and suggestions please do email us at iamahealthvisitor@gmail.com Resources and Further Reading: UK Infantile Spasms Trust: https://ukinfantilespasmstrust.org/about-infantile-spasms/ https://ukinfantilespasmstrust.org/ukistwp/wp-content/uploads/2018/11/UKIST-Information-Guide.pdf Epilepsy Action: https://www.epilepsy.org.uk/info/syndromes/west-syndrome-infantile-spasms Infantile Spasms Trust YouTube channel for example videos: https://www.youtube.com/channel/UCIZdN9LjQrYF7EwT16cuhmw Pavone et al 2020 academic review article: https://link.springer.com/article/10.1007/s10072-020-04600-5 Sheilds 2006 "little seizures, big consequences". Clinical summary article: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1464162/
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Infantile Spasms

I am a Health Visitor

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Manage episode 292784753 series 1755823
内容由I am a Health Visitor and Amy and Jenny提供。所有播客内容(包括剧集、图形和播客描述)均由 I am a Health Visitor and Amy and Jenny 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
Small seizures with big consequences. Infantile spasms or 'west syndrome' is a devastating diagnosis for any family and can so easily be missed. Listen to Jen and Amy discuss the health visitors role in supporting the family with identification of this tricky and subtle disorder as well as being alongside them through diagnosis, treatment and supporting the development of the child as they grow. For comments and suggestions please do email us at iamahealthvisitor@gmail.com Resources and Further Reading: UK Infantile Spasms Trust: https://ukinfantilespasmstrust.org/about-infantile-spasms/ https://ukinfantilespasmstrust.org/ukistwp/wp-content/uploads/2018/11/UKIST-Information-Guide.pdf Epilepsy Action: https://www.epilepsy.org.uk/info/syndromes/west-syndrome-infantile-spasms Infantile Spasms Trust YouTube channel for example videos: https://www.youtube.com/channel/UCIZdN9LjQrYF7EwT16cuhmw Pavone et al 2020 academic review article: https://link.springer.com/article/10.1007/s10072-020-04600-5 Sheilds 2006 "little seizures, big consequences". Clinical summary article: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1464162/
  continue reading

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