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内容由Elaine Godley提供。所有播客内容(包括剧集、图形和播客描述)均由 Elaine Godley 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
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Elaine Godley talks to David Rose | Rare Health Disease | Occipital Horn Syndrome

31:04
 
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Manage episode 364494530 series 3110479
内容由Elaine Godley提供。所有播客内容(包括剧集、图形和播客描述)均由 Elaine Godley 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

Elaine Godley talks to David Rose, who shares a true life experience of living with a very rare disease known as occipital horn syndrome (ohs), along with a few more common chronic health conditions.

David has been working in the rare disease industry for the last 5 years and has been doing various volunteer and trustee roles for nearly 11 years in rare disease and disability.

More about David: https://www.instagram.com/occipitalhornadvocate/ https://www.linkedin.com/in/drose2/ ~~~~~~~~~~~~~~~~~~~~ ELAINE GODLEY | Dedicated To Improving Your Health & Wellbeing 🌸 More details here: https://linktr.ee/elainegodley

  continue reading

378集单集

Artwork
icon分享
 
Manage episode 364494530 series 3110479
内容由Elaine Godley提供。所有播客内容(包括剧集、图形和播客描述)均由 Elaine Godley 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

Elaine Godley talks to David Rose, who shares a true life experience of living with a very rare disease known as occipital horn syndrome (ohs), along with a few more common chronic health conditions.

David has been working in the rare disease industry for the last 5 years and has been doing various volunteer and trustee roles for nearly 11 years in rare disease and disability.

More about David: https://www.instagram.com/occipitalhornadvocate/ https://www.linkedin.com/in/drose2/ ~~~~~~~~~~~~~~~~~~~~ ELAINE GODLEY | Dedicated To Improving Your Health & Wellbeing 🌸 More details here: https://linktr.ee/elainegodley

  continue reading

378集单集

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