Episode 13 — Rare Disease Day: Looking back. Forging ahead

Rare in Common: the podcast

Rare Disease Day marks 1 year of creating Rare in Common podcasts! In honor of this special day, which is celebrated by the rare disease community around the world, we’ve created an episode that highlights some familiar voices from past podcasts and even puts host Andra Stratton in the “guest seat” to answer some important questions. At the 2018 Global Genes RARE Patient Advocacy Summit, Andra was inspired by the 3 questions posed to everyone in attendance by keynote speaker Rachel Callander, TedX presenter and author of the award-winning Super Power Baby Project. She explores those questions with our guests and offers her personal answers as well. Our guests, all of whom have been featured in past episodes, represent an array of rare diseases, a vast collection of experiences, and many incredible stories and insights—all illustrating that as a rare community, we are stronger when we come together. We were honored to speak with these guests at the Global Genes RARE Patient Advocacy Summit a few months ago and are excited to share some special highlights of those conversations on Rare Disease Day.