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内容由Rare in Common and Cambridge BioMarketing提供。所有播客内容(包括剧集、图形和播客描述)均由 Rare in Common and Cambridge BioMarketing 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
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Episode 26 – From diagnosis to network director—living with XLH

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Manage episode 265322064 series 2136231
内容由Rare in Common and Cambridge BioMarketing提供。所有播客内容(包括剧集、图形和播客描述)均由 Rare in Common and Cambridge BioMarketing 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
Diagnosed with X-linked hypophosphatemia (XLH), Susan has faced the challenges of living with this rare disease to become an advocate of the community and an influential force behind the XLH Network. The global community recently celebrated the second annual XLH Awareness Day on June 23, 2020. This episode is brought to you by Ultragenyx.
  continue reading

29集单集

Artwork
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Manage episode 265322064 series 2136231
内容由Rare in Common and Cambridge BioMarketing提供。所有播客内容(包括剧集、图形和播客描述)均由 Rare in Common and Cambridge BioMarketing 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
Diagnosed with X-linked hypophosphatemia (XLH), Susan has faced the challenges of living with this rare disease to become an advocate of the community and an influential force behind the XLH Network. The global community recently celebrated the second annual XLH Awareness Day on June 23, 2020. This episode is brought to you by Ultragenyx.
  continue reading

29集单集

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