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Maria Mendoza's Story
Manage episode 362501374 series 3276234
内容由Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden提供。所有播客内容（包括剧集、图形和播客描述）均由 Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品，您可以按照此处概述的流程进行操作https://zh.player.fm/legal。
- Guest: Maria Mendoza, a parent and sickle cell disease advocate for her children and other families with SCD children.
- Maria has 2 children with SCD (Luis, 11 years old, and Andrea, 7 years old) and 1 with SCT.
- Maria stresses the importance of communicating with her children's teachers about their SCD condition and advocating for their needs.
- Lack of privacy, understanding from teachers, and potential bullying from classmates can all contribute to the loss of dignity for the child with SCD.
- Education and awareness are crucial to ensure that employers, educators, and healthcare professionals are knowledgeable about the disease and can provide necessary support.
- Sickle cell disease affects individuals from various ethnicities and backgrounds.
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