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Nthabeleng Paulette Ramoeli, Patient advocate
Manage episode 358216813 series 2922340
内容由The Health Design Podcast and Moyez Jiwa提供。所有播客内容（包括剧集、图形和播客描述）均由 The Health Design Podcast and Moyez Jiwa 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品，您可以按照此处概述的流程进行操作https://zh.player.fm/legal。
Ramoeli was born in Lesotho, a country encircled by South Africa, and lives with Ehlers-Danlos syndromes and many other comorbid conditions. This young woman relentlessly fights for improved access to health care for rare disease patients in her home country and shares the story of her path to the diagnosis of EDS diagnosis in the context of a place where healthcare resources cannot be taken for granted. She established an NGO to help all rare disease patients in Lesotho.
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