Artwork

内容由Jess Ngaheu提供。所有播客内容(包括剧集、图形和播客描述)均由 Jess Ngaheu 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
Player FM -播客应用
使用Player FM应用程序离线!

Unyielding Courage: Advocating for My Special Needs Child Against Medical Negligence

22:17
 
分享
 

Manage episode 417939328 series 3552326
内容由Jess Ngaheu提供。所有播客内容(包括剧集、图形和播客描述)均由 Jess Ngaheu 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

Do you know what it takes to stand up against medical negligence, especially when it involves your child? In this moving episode of the Jess Ngaheu podcast, Jess shares her profound journey of advocating for her special needs son, Hawaiki, against medical negligence. She discusses the relentless challenges and emotional struggles of securing the proper care and uncovering the truth about her son’s medical condition. This episode is a powerful exploration of parental advocacy, trust in intuition, and the hurdles of navigating the healthcare system with a special needs child.

Key Takeaways:

  1. Why Parental Advocacy is Non-Negotiable: Jess emphasises the critical role parents play in advocating for their child’s health, especially in complex medical situations.
  2. How Difficult is it to Access Medical Records? Jess discusses her struggles in obtaining Hawaiki's medical records, highlighting systemic issues in healthcare communication.
  3. What Happens When Diagnoses Go Wrong? The episode covers the initial misdiagnosis of Hawaiki's condition and the devastating impact of discovering the truth about his severe brain damage.
  4. Importance of Legal Battles for Justice: Jess talks about the ongoing court case for medical negligence, showing the legal complexities when fighting for a child’s rights.
  5. Trusting Your Gut: The story reinforces trusting one's intuition as a parent when it comes to the well-being of a child.

Chapters:

(01:17) Struggle for Medical Records: Challenges faced in obtaining Hawaiki's medical records and the importance of documentation.
(02:39) Diagnosis and Heartbreak: Initial diagnosis, the emotional impact of learning the truth about Hawaiki’s condition.
(07:41) Advocacy Beyond the Hospital: Experiences with Jetstar regarding accommodations for Hawaiki, demonstrating broader advocacy beyond medical settings.
(13:40) Hospital Challenges and Ryan’s Rule: Detailed experiences in the hospital, including invoking Ryan's Rule due to inadequate care.
(20:20) Facing the Truth and Ongoing Legal Battle: Discussing the lawsuit and the determination to fight for Hawaiki’s future.

Quotes:

  • "If you feel there's something wrong, there definitely is something wrong. No one can ever tell you any different."
  • "You are the greatest expert on your child, not a GP, not a doctor, not even someone that specialises in that field."
  • "It is heart-wrenching finding out those details, but thank Christ, I'm fighting for him with this lawsuit."

To learn more about Maternal Grounding and to book Pregnancy Massage, Postpartum Massage, and Baby Massage, visit https://maternalgrounding.com.au/services/

Connect with us on social media:

- Instagram: https://www.instagram.com/maternalgrounding/

- Instagram: https://www.instagram.com/littlesuperheroes_/

- Facebook: https://www.facebook.com/maternalgrounding

Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6
For inquiries, guesting opportunities, or collaborations, reach out to us at hello@maternalgrounding.com.au

  continue reading

26集单集

Artwork
icon分享
 
Manage episode 417939328 series 3552326
内容由Jess Ngaheu提供。所有播客内容(包括剧集、图形和播客描述)均由 Jess Ngaheu 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

Do you know what it takes to stand up against medical negligence, especially when it involves your child? In this moving episode of the Jess Ngaheu podcast, Jess shares her profound journey of advocating for her special needs son, Hawaiki, against medical negligence. She discusses the relentless challenges and emotional struggles of securing the proper care and uncovering the truth about her son’s medical condition. This episode is a powerful exploration of parental advocacy, trust in intuition, and the hurdles of navigating the healthcare system with a special needs child.

Key Takeaways:

  1. Why Parental Advocacy is Non-Negotiable: Jess emphasises the critical role parents play in advocating for their child’s health, especially in complex medical situations.
  2. How Difficult is it to Access Medical Records? Jess discusses her struggles in obtaining Hawaiki's medical records, highlighting systemic issues in healthcare communication.
  3. What Happens When Diagnoses Go Wrong? The episode covers the initial misdiagnosis of Hawaiki's condition and the devastating impact of discovering the truth about his severe brain damage.
  4. Importance of Legal Battles for Justice: Jess talks about the ongoing court case for medical negligence, showing the legal complexities when fighting for a child’s rights.
  5. Trusting Your Gut: The story reinforces trusting one's intuition as a parent when it comes to the well-being of a child.

Chapters:

(01:17) Struggle for Medical Records: Challenges faced in obtaining Hawaiki's medical records and the importance of documentation.
(02:39) Diagnosis and Heartbreak: Initial diagnosis, the emotional impact of learning the truth about Hawaiki’s condition.
(07:41) Advocacy Beyond the Hospital: Experiences with Jetstar regarding accommodations for Hawaiki, demonstrating broader advocacy beyond medical settings.
(13:40) Hospital Challenges and Ryan’s Rule: Detailed experiences in the hospital, including invoking Ryan's Rule due to inadequate care.
(20:20) Facing the Truth and Ongoing Legal Battle: Discussing the lawsuit and the determination to fight for Hawaiki’s future.

Quotes:

  • "If you feel there's something wrong, there definitely is something wrong. No one can ever tell you any different."
  • "You are the greatest expert on your child, not a GP, not a doctor, not even someone that specialises in that field."
  • "It is heart-wrenching finding out those details, but thank Christ, I'm fighting for him with this lawsuit."

To learn more about Maternal Grounding and to book Pregnancy Massage, Postpartum Massage, and Baby Massage, visit https://maternalgrounding.com.au/services/

Connect with us on social media:

- Instagram: https://www.instagram.com/maternalgrounding/

- Instagram: https://www.instagram.com/littlesuperheroes_/

- Facebook: https://www.facebook.com/maternalgrounding

Interested in being a podcast guest? Fill out the form https://forms.gle/zNbMezugBZxAJxBa6
For inquiries, guesting opportunities, or collaborations, reach out to us at hello@maternalgrounding.com.au

  continue reading

26集单集

همه قسمت ها

×
 
Loading …

欢迎使用Player FM

Player FM正在网上搜索高质量的播客,以便您现在享受。它是最好的播客应用程序,适用于安卓、iPhone和网络。注册以跨设备同步订阅。

 

快速参考指南