Redefining Rest: Haley’s Resilience with IH and Chronic Illnesses

Narcolepsy Navigators Podcast

Years ago, Hayley Wall made the bold decision to transition from a demanding hospital role to a flexible occupational therapy position in pediatric home health. This change not only suited her professional skills but also provided the adaptability needed to manage her idiopathic hypersomnia (IH). In this episode, Hayley opens up about how this career shift has empowered her to effectively balance her health with her work and personal life. We also hear from our co-host Liz, who shares her anticipation of an upcoming family event and reflects on her own journey living with narcolepsy.

Navigating the complexities of chronic illness is no easy feat, especially when conditions like type 1 diabetes, idiopathic hypersomnia, and even narcolepsy intersect. Our conversation traverses the landscape of symptoms, diagnostics, and the technological aids that assist in managing these conditions. Hayley and I exchange stories about how self-awareness has been vital in recognizing and addressing the symptoms of our respective illnesses. The dialogue offers insights into the diagnostic processes for IH and the differences from narcolepsy, painting a vivid picture of the day-to-day challenges faced by those living with these conditions.

The power of community, advocacy, and transparency emerges as a central theme throughout our discussion. Hayley shares her passion for advocacy through her social media presence, the Sleepy_OT, and underscores the importance of being open about health challenges with employers to ensure the necessary accommodations are in place. As we explore the balance between professional duties and personal health, we highlight the significant role of supportive communities in making the journey less isolating. Wrapping up with a note of encouragement, we remind our listeners to engage in self-care and seek professional guidance for their health needs.

Chapters Timestamps

(02:44) Benefits of Pediatric Home Health
(07:59) Parental Control and Support for Diabetes
(16:37) Managing Productivity and Energy Levels
(19:37) Using Yoga Balls for Sensory Input
(24:28) Flexibility and Understanding in Home Health
(29:36) Raising Awareness of Idiopathic Hypersomnia
(36:23) Navigating Professional Identity With Chronic Conditions
(48:03) Overlap in Sleep Disorders and Comorbidities

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***If you find these symptoms relatable, please seek medical advice.***