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内容由Jessica Temple提供。所有播客内容(包括剧集、图形和播客描述)均由 Jessica Temple 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
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The Spoonie Struggle

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内容由Jessica Temple提供。所有播客内容(包括剧集、图形和播客描述)均由 Jessica Temple 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan’s, Ankylosing spondylitis, Sjogren’s syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with our chronic health conditions, speak with other spoonies about their experiences, discuss coping, advocating, and self-care related to chronic illness, provide helpful and well-vetted resources, and interview professionals who are experts in the field to gain further insight into our conditions and learn about ways to educate family, friends, and doctors, advocate for ourselves, cope with our conditions, and hopefully, thrive! This is a great way to join a like-minded community and to meet people who are in the same boat as you. And, to realize that you are not alone. This is a nonjudgmental space to help each other through our chronic illness journey, to be an actual self again, and to make thriving in life an actual possibility.
  continue reading

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Artwork

The Spoonie Struggle

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Fetch error

Hmmm there seems to be a problem fetching this series right now. Last successful fetch was on December 30, 2022 08:52 (1+ y ago)

What now? This series will be checked again in the next day. If you believe it should be working, please verify the publisher's feed link below is valid and includes actual episode links. You can contact support to request the feed be immediately fetched.

Manage series 2905375
内容由Jessica Temple提供。所有播客内容(包括剧集、图形和播客描述)均由 Jessica Temple 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan’s, Ankylosing spondylitis, Sjogren’s syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with our chronic health conditions, speak with other spoonies about their experiences, discuss coping, advocating, and self-care related to chronic illness, provide helpful and well-vetted resources, and interview professionals who are experts in the field to gain further insight into our conditions and learn about ways to educate family, friends, and doctors, advocate for ourselves, cope with our conditions, and hopefully, thrive! This is a great way to join a like-minded community and to meet people who are in the same boat as you. And, to realize that you are not alone. This is a nonjudgmental space to help each other through our chronic illness journey, to be an actual self again, and to make thriving in life an actual possibility.
  continue reading

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