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内容由Raylene Lewis提供。所有播客内容(包括剧集、图形和播客描述)均由 Raylene Lewis 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
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It's Not All in My Head: An HHT Story

20:19
 
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Manage episode 354738010 series 3413897
内容由Raylene Lewis提供。所有播客内容(包括剧集、图形和播客描述)均由 Raylene Lewis 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

This podcast starts with a brief explanation of the genetic condition, Hereditary Hemorrhagic Telangiectasia (HHT) and tells the story of Stephany Zumerling who suffered for years without the correct diagnosis. Her medical journey offers lessons we can all learn from and highlights the importance of finding a doctor who takes the time to listen to their patient and investigate symptoms that don't make sense. The podcast ends with lessons learned from Chapter 9 of our current focus book Suffer Strong: written by Katherine and Jay Wolf.

Support the show

Webpage: https://www.avmalliance.org
Go Fund Me: https://www.gofundme.com/f/avmalliance
Our FB Page: https://www.facebook.com/AVMAlliance
Our FB Group: https://www.facebook.com/groups/325321586185434
Instagram: https://www.instagram.com/avmalliance/
TikTok: https://www.tiktok.com/@avmalliance
YouTube: https://www.youtube.com/@avmalliance
Personal Blog: https://www.caringbridge.org/visit/kylerlewis
Twitter: https://twitter.com/avmawareness

  continue reading

章节

1. It's Not All in My Head: An HHT Story (00:00:00)

2. General Information about HHT (00:00:37)

3. Guest Introduction (00:01:34)

4. Guest Interview Stephany Zumerling (00:02:02)

5. Chapter 9 : The Power of "We" -- Suffer Strong (00:18:34)

6. Inspirational Quote (00:19:11)

7. Inspirational Song (00:19:17)

21集单集

Artwork
icon分享
 
Manage episode 354738010 series 3413897
内容由Raylene Lewis提供。所有播客内容(包括剧集、图形和播客描述)均由 Raylene Lewis 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

This podcast starts with a brief explanation of the genetic condition, Hereditary Hemorrhagic Telangiectasia (HHT) and tells the story of Stephany Zumerling who suffered for years without the correct diagnosis. Her medical journey offers lessons we can all learn from and highlights the importance of finding a doctor who takes the time to listen to their patient and investigate symptoms that don't make sense. The podcast ends with lessons learned from Chapter 9 of our current focus book Suffer Strong: written by Katherine and Jay Wolf.

Support the show

Webpage: https://www.avmalliance.org
Go Fund Me: https://www.gofundme.com/f/avmalliance
Our FB Page: https://www.facebook.com/AVMAlliance
Our FB Group: https://www.facebook.com/groups/325321586185434
Instagram: https://www.instagram.com/avmalliance/
TikTok: https://www.tiktok.com/@avmalliance
YouTube: https://www.youtube.com/@avmalliance
Personal Blog: https://www.caringbridge.org/visit/kylerlewis
Twitter: https://twitter.com/avmawareness

  continue reading

章节

1. It's Not All in My Head: An HHT Story (00:00:00)

2. General Information about HHT (00:00:37)

3. Guest Introduction (00:01:34)

4. Guest Interview Stephany Zumerling (00:02:02)

5. Chapter 9 : The Power of "We" -- Suffer Strong (00:18:34)

6. Inspirational Quote (00:19:11)

7. Inspirational Song (00:19:17)

21集单集

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