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"The Hospital Refused to Recognize my Daughter as a Girl"
Manage episode 409190410 series 3528806
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Welcome to another astonishing CAH story. In this 6th episode of CAH Pulse, Stephanie and Dina learn the startling details of David and Brianne's CAH journey with their little girl who was born into an uncertain world. Not only was her birthday during the height of the COVID-19 pandemic, but their newborn was diagnosed with salt-wasting CAH in a hospital with medical professionals who knew little to nothing about the condition.
David and Brianne open up about their harrowing journey from their daughter's adrenal insufficiency to her atypical genitalia. They explain the hardships of giving birth with COVID-19 protocols, including social distancing and the miscommunication it had caused. They also lament about the hospital staff's position of not recognizing their daughter as a girl with the recommendation that they wait to name their baby.
Join Stephanie and Dina as they uncover the shocking lack of understanding, empathy and support this resilient family endured in their 3rd trimester of pregnancy through the first weeks of their precious baby's life.
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