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Fierce Advocacy for Those Who Live with Lymphedema: A woman’s 13-year battle to get the Lymphedema Treatment Act passed in the US
Manage episode 420736978 series 3564605
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Heather worked relentlessly to improve accessibility to and coverage of Lymphedema Treatment vastly!
In this compelling episode of Everything Cancer, we sit down with Heather Ferguson, founder and executive director of the Lymphedema Advocacy Group, recently known as Lymphedema Treatment Act.org. Find out how Heather’s 13-year odyssey at the level of national legislature enabled her to change the name of her organization from “Treatment Act” to “Advocacy Group”!
Heather shares her inspiring advocacy journey, spurred by her son's diagnosis and incredulity at the lack of coverage for Lymphedema Treatment over simple wording.
This episode sheds light on the complexities of living with lymphedema, the importance of effective treatment, and the significant legislative triumph with the passing of the Lymphedema Treatment Act. Heather offers practical tips for patients facing insurance denials, emphasizing the importance of appealing and leveraging support from state departments and HR departments.
https://lymphedematreatmentact.org/
Newsletter for Lymphedema Advocacy Group https://lymphedematreatmentact.org/category/newsletter-archives/
Contact Heather at info@lymphedematreatmentact.org
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Here is the link for the acclaimed cancer self-advocacy guide by Jill Squire, host of Everything Cancer Podcast
"Cancer Journey Guide and Journals: Empowerment in Diagno...
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