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125: World FSHD Day Special
Manage episode 424639599 series 3410030
内容由FSHD Straight Talk提供。所有播客内容（包括剧集、图形和播客描述）均由 FSHD Straight Talk 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品，您可以按照此处概述的流程进行操作https://zh.player.fm/legal。
It’s World FSHD Day! To celebrate today, Tim Hollenback, FSHD Straight Talk host, talks with: Ricardo Gerpe from FSHD Spain; Chelsea Moeller from the FSHD Society; Rick & Terry Colella from Friends of FSH Research; Jennifer Cherniwchan or the Alberta Chapter; Chris Carrino, announcer for the Brooklyn Nets and founder of the Chris Carrino Foundation for FSHD; and volunteer Priscilla Sharun.
For more information about World FSHD, please visit the FSHD Society website.
If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media.
Email: FSHDRadio@FSHDSociety.Org
For more information about World FSHD, please visit the FSHD Society website.
If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media.
Email: FSHDRadio@FSHDSociety.Org
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