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Disability Advocates / Innovative Women - Heather & Jessica Tomko
Manage episode 357680432 series 2939625
内容由Vince Cortese提供。所有播客内容（包括剧集、图形和播客描述）均由 Vince Cortese 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品，您可以按照此处概述的流程进行操作https://zh.player.fm/legal。
Heather and Jessica Tomko are sisters who both have a genetic, neuromuscular disease called Spinal Muscular Atrophy (SMA). SMA affects the motor neurons, which causes people with SMA to have weak muscles that atrophy over time. Heather and Jessica were both diagnosed as infants, and a life with SMA is all they have ever known. They strive to bring their full selves, disability and all, to a world that is often inaccessible and not accepting of disabilities.
Watch full episode on YouTube
Resources Mentioned:
- Heather's blog: https://theheatherreport.com
- Heather's Instagram: https://www.instagram.com/theheatherreport
- Heather's work: https://www.caregiving.pitt.edu
- Jessica's Instagram: https://www.instagram.com/jessicatomko
- Article that Jessica wrote: https://triblive.com/opinion/jessica-tomko-disability-representation-in-the-entertainment-industry
- Film Pittsburgh Reel Abilities Festival: https://filmpittsburgh.org/pages/reelabilities
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章节
1. Preview (00:00:00)
2. Early Life (00:01:09)
3. Spinal Muscular Atrophy (SMA) Diagnosis (00:02:01)
4. Relationship as Sisters and with Parents (00:05:39)
5. Colleges & Careers (00:12:30)
6. Heather's Work (00:19:18)
7. Jessica's Work (00:22:12)
8. Billboard Message (00:23:52)
9. How will you two leave your marks? (00:26:30)
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