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Drops From The Well of Suffering: Honoring Maeve Boothby O’Neill
Manage episode 433090249 series 3566652
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It is a travesty that Maeve did not receive nutrition like I received. I was just as sick as Maeve with very similar symptoms, including sensitivity to stimuli like light, sounds, voices and the company of other people in my room and like Maeve, I could not eat enough food to survive. If I was treated the way Maeve was treated, I would be dead just like Maeve. Luckily, I had doctors who viewed ME/CFS as the serious physiological disease that it is, and who understood that the risk of needing to take antibiotics occasionally or add a few extra steps to my daily routine was better than the certainty of death from starvation, dehydration or malnutrition, which is what killed Maeve. Maeve just needed a way to get nutrition into her body. I got TPN and lived. Maeve was denied TPN and died.
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