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Want to be involved in the Ataxian PROM?
Manage episode 310696192 series 3068946
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Want to be involved in the Ataxian PROM? Dr Schmahmann and Mary Donovan need your help and explain how to get involved.
Thank you for your interest in participating in our Ataxia-Patient Reported Outcome Measure(PROM)!
If you have any questions, please do not hesitate to email us at cerebellum@mgh.harvard.edu. You can also reach out to our Research Coordinator, Samantha Pierce, at 617-726-4961. Below is the link to the surveys. One is for participants diagnosed with Ataxia, and one is for relatives of these participants. Make sure you are taking the correct survey:
PATIENTS Survey-https://docs.google.com/forms/d/e/1FAIpQLSf9SuSckJarrddQPjQtybUKiPFLbJKPh1df1yurxOtiCTDArA/viewform?usp=sf_link
RELATIVES/CAREGIVERS Survey- https://docs.google.com/forms/d/e/1FAIpQLSeZdmra_yZydiVusRCWD_IT28flXRCjY013AUnD6sj3qSF7QA/viewform?usp=sf_link
Please feel free to forward this to other people associated with ataxia (either a patient, relative, or caregiver) who would be interested in completing this survey. This survey will be closed to responses on May, 15th.
Thank you again for your participation.
Dr Schmahmann
iTunes
https://itunes.apple.com/us/podcast/know-ataxia-ataxia/id1312495222?mt
SoundCloud
https://soundcloud.com/user-536040137-843024175
Facebook
https://www.facebook.com/ataxiadidyouknow/
Website
http://www.rideforjohn.org/
Instagram
https://www.instagram.com/ataxian_/
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