Artwork

内容由Pearl Mashour提供。所有播客内容(包括剧集、图形和播客描述)均由 Pearl Mashour 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal
Player FM -播客应用
使用Player FM应用程序离线!

Transforming Grief into Positive Action

35:57
 
分享
 

Manage episode 436604857 series 3317851
内容由Pearl Mashour提供。所有播客内容(包括剧集、图形和播客描述)均由 Pearl Mashour 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

What did you think of the podcast? Send your comments here!

This episode explores the emotional journey of parents facing a rare disease diagnosis in their child. It focuses on the story of Ilissa Reich and her son Eli, who was diagnosed with FOXG1 syndrome at a young age. FOXG1 is a severe neurological and developmental disorder impacting a child's ability to walk, talk, and develop normally.

What You Will Learn:

  • The challenges faced by families dealing with FOXG1 syndrome.
  • The symptoms of FOXG1 syndrome, including epilepsy, developmental delays, and vision problems.
  • The work of Believe in a Cure, a non-profit founded by Ilissa Reich to raise funds for FOXG1 research and support families.
  • The importance of community support for families with special needs children.

About ‘Believe in a Cure’:

Believe in a Cure is a non-profit organization dedicated to finding a cure for FOXG1 syndrome. Founded in 2019, they have raised millions of dollars and supported numerous research projects globally.

Connect with Believe in a Cure:

This episode is a powerful testament to the strength and determination of parents advocating for their children's health.

Pearl Mashour is a Master Women Empowerment Coach, Life Coach & Multiple Subject Credentialed Teacher

Learn more about Pearl Mashour at www.femalefluence.com

Connect with me on IG @pearlmashour_femalefluence
Follow along on TikTok
Subscribe on YouTube

Connect with me on FB @femalefluence

Email: info@femalefluence.org


  continue reading

37集单集

Artwork
icon分享
 
Manage episode 436604857 series 3317851
内容由Pearl Mashour提供。所有播客内容(包括剧集、图形和播客描述)均由 Pearl Mashour 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

What did you think of the podcast? Send your comments here!

This episode explores the emotional journey of parents facing a rare disease diagnosis in their child. It focuses on the story of Ilissa Reich and her son Eli, who was diagnosed with FOXG1 syndrome at a young age. FOXG1 is a severe neurological and developmental disorder impacting a child's ability to walk, talk, and develop normally.

What You Will Learn:

  • The challenges faced by families dealing with FOXG1 syndrome.
  • The symptoms of FOXG1 syndrome, including epilepsy, developmental delays, and vision problems.
  • The work of Believe in a Cure, a non-profit founded by Ilissa Reich to raise funds for FOXG1 research and support families.
  • The importance of community support for families with special needs children.

About ‘Believe in a Cure’:

Believe in a Cure is a non-profit organization dedicated to finding a cure for FOXG1 syndrome. Founded in 2019, they have raised millions of dollars and supported numerous research projects globally.

Connect with Believe in a Cure:

This episode is a powerful testament to the strength and determination of parents advocating for their children's health.

Pearl Mashour is a Master Women Empowerment Coach, Life Coach & Multiple Subject Credentialed Teacher

Learn more about Pearl Mashour at www.femalefluence.com

Connect with me on IG @pearlmashour_femalefluence
Follow along on TikTok
Subscribe on YouTube

Connect with me on FB @femalefluence

Email: info@femalefluence.org


  continue reading

37集单集

Όλα τα επεισόδια

×
 
Loading …

欢迎使用Player FM

Player FM正在网上搜索高质量的播客,以便您现在享受。它是最好的播客应用程序,适用于安卓、iPhone和网络。注册以跨设备同步订阅。

 

快速参考指南