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How high is the real cost?
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Life with a rare disease changes everything for parents.
What is the cost of stress?
What is the cost of scheduling everything?
What is the cost of explaining your situation...again?
What is the cost of one more thing?
On this episode of Raising Rare our cohosts have the opportunity to share the costs of Rare Diseases. Those costs reach so far beyond finances. Brittany and Sanath really dig into the impact that raising children with a rare disease has had on their relationships, their decisions, their mental health, and so much more. This episode is an opportunity to start conversations and raise awareness to how costly rare diseases really are on all aspects of life.
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