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Episode 5: Kaitlyn's Experience

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Manage episode 315394835 series 3025399
内容由Romila Santra提供。所有播客内容(包括剧集、图形和播客描述)均由 Romila Santra 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

Learn about Kaitlyn's experience with her younger sister, diagnosed with 1p36 deletion syndrome. She discusses how being a sibling led to qualities that she employs in her career, sheds light on her sister's rare genetic disorder, and shares how she dealt family health issues as a teenager.

Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!

If you or someone you know is affected by 1p36 deletion syndrome, here is a link to some resources: http://www.1p36dsa.org/online-community/.

Please contact munkasantra@gmail.com with any questions, concerns, or comments, or to inquire about being on an episode.

(Transcript coming soon!)

  continue reading

9集单集

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Manage episode 315394835 series 3025399
内容由Romila Santra提供。所有播客内容(包括剧集、图形和播客描述)均由 Romila Santra 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

Learn about Kaitlyn's experience with her younger sister, diagnosed with 1p36 deletion syndrome. She discusses how being a sibling led to qualities that she employs in her career, sheds light on her sister's rare genetic disorder, and shares how she dealt family health issues as a teenager.

Here is a link to many resources for siblings of someone with special needs: https://www.siblingresources.org/resources. Sib20 and SibNet are fantastic Facebook communities with thousands of siblings!

If you or someone you know is affected by 1p36 deletion syndrome, here is a link to some resources: http://www.1p36dsa.org/online-community/.

Please contact munkasantra@gmail.com with any questions, concerns, or comments, or to inquire about being on an episode.

(Transcript coming soon!)

  continue reading

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