Racing the Clock against ALS, with Daniel Barvin

Causes or Cures

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10M ago 36:18

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In this episode of Causes or Cures, Dr. Eeks chats with Daniel Barvin, Vice President of Operations and Patient Advocacy at Coya Therapeutics, a trailblazing company working on groundbreaking treatments for ALS and Alzheimer's. In the podcast, Daniel will tell us more about the debilitating and fatal disease ALS and the therapies they are testing at Coya Therapeutics which target T cells, cells that form an important part of the immune system.
Daniel's fight against ALS is personal. He has lost several family members to ALS, including his father, uncle, grandfather, and aunt. He is also a carrier of the ALS gene, and realizes it may only be a matter of time until he shows signs of the disease. As a young man now, he discusses what that feels like in the podcast.
Daniel also talks about finding a way to have kids with his wife to avoid passing on the ALS gene and finding the group End the Legacy, a not-for-profit organization that provides support and resources for the 1 million individuals with or at risk of genetic ALS and FTD.
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