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Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire
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A genetic disease Cover art photo provided by Efe Kurnaz on Unsplash: https://unsplash.com/@efekurnaz
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By Brayden and Tyler
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Podcast by Jerry Cahill
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CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
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This podcast dives deep into the risks and benefits of attempting gene therapy on cystic fibrosis patients. Listen to see the final decisions made on the matter.
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An original podcast that gets inside the heads of the Cystic Fibrosis Community to talk about all kinds of topics with respect and honesty.
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Podcast by Jerry Unplugged: A Cystic Fibrosis Podcast
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Breaking Through is a monthly narrative podcast produced by the Cystic Fibrosis Foundation's Tomorrow's Leaders group. Breaking Through is meant to help Tomorrow's Leaders members develop professionally, foster community, and learn from others through rich storytelling, while also recruiting and engaging new members.
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My name is Justin. I created this podcast to tell the life of a person with Cystic Fibrosis. I am in my late 30's and run half marathons as well as live the life as best as I can in San Diego, CA.
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A dynamic podcast exploring the different experiences people with cystic fibrosis may face during their lives. Gunnar Esiason joins Tiffany Rich and Lea Faraone, otherwise known as the Salty Cysters, to talk about the in's and out's of cystic fibrosis from some of the anxieties and stresses that patients face to some of the lighter sides of the disease. Breathe In: A Cystic Fibrosis Podcast aims to characterize the disease in a positive way while showcasing the challenges that people with cy ...
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When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. What the CF! was born out of a curiosity to learn more, support others, and share experiences while we navigate our own CF journey. We want to tell the stories of others and answer the FAQ's that come along with a diagnosis. We'll seek the knowledge of experts and those living wit ...
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A dynamic Cystic Fibrosis Podcast, educating people on the different experiences and lives that CFers face. Discussing all sides of CF, including the fearful, the ambitious, the emotional and the challenging. A podcast that is purposely made to educate but more importantly comfort fellow CFers and support the CF community💛
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Welcome to Scattered Seeds Still Bloom Podcast. Here on this Podcast we talk about the cross we bear in our health struggles from diseases, long term illnesses, cancers, and more. But more importantly how CHRIST is our Victor through them, helping us to overcome our circumstances, and rise above our illnesses. I am your host, Katie Oskin. I have Cystic Fibrosis, a rare diease. But with Christ as the center of my life, I’ve learned to live life backward, stand in His Strength, and Rise in His ...
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Cystic fibrosis (CF) is one of the most prevalent global congenital disorders, affecting some 70,000 individuals worldwide and 30,000 children and adults in the United States. While clinical efforts are expanding worldwide to improve diagnostic testing and treatment approaches for this progressive lung disease, targeted therapies for CF against any specific mutation remain elusive. The Cystic Fibrosis in Focus series gathers the latest information from leading medical experts devoted to adva ...
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Wellness isn’t just about mindfulness, exercise, or the right skin routine. Science, politics, media, culture, tech — everything around us — interact to shape our health. On America Dissected, Dr. Abdul El-Sayed cuts into what really makes us sick — be it racism, corporate greed, or snake oil influencers — and what it'll take to heal it. From for-profit healthcare to ineffective sunscreens, America Dissected cuts deeper into the state of health in America. New episodes every Tuesday. Want to ...
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A Pediatric Podcast here to feed pediatric knowledge food to your adult-sized brain hole & provide weight-based dosings of fun.
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ASN Podcasts serve as a connection to everything nephrology including interviews with experts and discussions about cutting-edge advances in research and care.
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Jerry Cahill used the short video format to educate and inspire people with cystic fibrosis to utilize exercise to improve health.
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Your professional development is critical to the care of your patients. Stay on top of the latest treatments and information with ReachMD's CME activities. Our topics span cardiology, diabetes, oncology, women's health and more. And our CME library is continuously growing, every quarter.
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Your professional development is critical to the care of your patients. Stay on top of the latest treatments and information with ReachMD's CME activities. Our topics span cardiology, diabetes, oncology, cardiology, women's health and more. And our CME library is continuously growing, every quarter.
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The Choose Your Attitude® podcast is a source of inspiration and motivation for many, fueled by real stories from real people who have struggled with real challenges. Each podcast — and show guest — reminds you that no matter the challenge, you hold the power of perspective, allowing it to shift your attitude from being held down by the impossible to being propelled with the possible. No struggle is too big to impact the small choice you make of your attitude on how you approach it, all in t ...
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A Pediatric Podcast for Healthcare Providers
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A podcast about Men’s health -we tackle the subjects that men just don’t talk about enough.
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Radio In Vivo
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Expert insight and analysis providing information directly relevant to cystic fibrosis care, through topic-focused newsletters summarizing the peer-reviewed literature and accompanying podcasts to illustrate how to apply that information in the clinic. Hosted on Acast. See acast.com/privacy for more information.
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The official podcast of Shoemaker Films. Every week we share content related to digital marketing, video production, and brand building; and frequently meet with local creatives, entrepreneurs, and business owners for in-depth conversations. Get to know local heavy hitters and influencers in the Greater Philadelphia region while picking up some tactical advice and tips on starting and running a business, being productive, creating content, and everything in between.
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Flip Your Script is a podcast about life’s critical turning points and how people find the inspiration and motivation to move forward and rewrite their unique stories. The show is hosted by Kristi Piehl, who flipped her script from an Emmy-winning journalist to a successful entrepreneur (Media Minefield) and speaker.
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Two friends who are just thinking out loud. Reddit, anonymous, true crime, mental health... We talk about it all, and we talk a lot.
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Nutrition Pearls: The Pediatric GI Nutrition Podcast is brought to you by the Council for Pediatric Nutrition Professionals (CPNP), part of the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition (NASPGHAN). This podcast will feature topics related to GI nutrition and information on CPNP. The podcast is supported by an educational grant from Reckitt Mead Johnson Nutrition.
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"From Lab to Life" is a cutting-edge podcast that bridges the gap between groundbreaking medical research and real-world clinical practice. Hosted by leading experts in the healthcare field, each episode delves into the latest innovations in medicine, offering insights on how scientific discoveries translate into practical solutions for patient care. From emerging therapies to case-based discussions, this podcast equips healthcare professionals with the knowledge they need to bring the futur ...
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The Urology Care Foundation is the official foundation of the American Urological Association. We support reliable patient education on urology health issues. Learn more at UrologyHealth.org.
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Every Monday, Antonio and Joe talk about the things that they find interesting from physics, to philosophy, to technology.
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Weekly Fitness Podcast hosted by Seán & Eric where endurance, fitness and laughter meet. Whether you're a seasoned marathoner or just taking your first steps on the road, this podcast is your ultimate companion for all things running/endurance related. With expert insights from special weekly guests detailing their training journey that will help you with yours, motivational anecdotes, and a passion for pounding the pavement, Any Given Runday is your go-to podcast for all things running. Fro ...
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Dig into the leading edge of pediatric research with scientists from Stanley Manley Children's Research Institute at the Ann & Robert H. Lurie Children's Hospital of Chicago, one of the nation's largest freestanding pediatric research centers. On each episode, Patrick Seed, MD, PhD, president and chief research officer of Stanley Manley Children's Research Institute, talks with experts chasing solutions to the most pressing health challenges faced by kids and teens today.
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The Beyond the Pearls podcast, based on the Morning Report series from Elsevier, has been adapted for audio in collaboration with series editor, Dr. Raj Dasgupta, InsideTheBoards, and the volume editors of the Morning Report series’ five volumes covering Internal Medicine, Obstetrics and Gynecology, Pediatrics, Psychiatry, and Surgery. Like the books in the series, the podcast uses an in-depth case dissection format and aims to deliver practical, concise and easy to digest information that i ...
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A podcast about life ups and downs and the beauty of it all. If you are looking for some real talk, about real life, with a lot of inspiration, this podcast is for you.
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Podcast by Bone Banter
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Talks about nursing, health & social care, academics & study skills. A Podcast for nurses & health professionals but really, all welcome to listen!
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Leeds Voices is a brand new weekly podcast brought to you by the University of Leeds. Join us as we interview some of the illustrious alumni who studied at the University of Leeds, as well as discussions with the institution's world-class researchers. Follow us on Twitter and Instagram at @leedsalumni or email us at alumni@leeds.ac.uk
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Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors.
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Providing health tips about weight loss, energy, sports performance, and psychology of motivation and achievement.
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Be inspired by Michael Banks and his guests' fascinating stories of moving from fear and crisis to a new understanding of themselves. Discover how to use pain, loss and suffering to become a wiser, better person. Explore how to reinvent your life and find more freedom, love and authenticity by learning from hard times.
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A monthly podcast from the European Respiratory Journal, summarising the research findings of a number of papers published in each issue.
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Patient rights: do you know about the rights you have in regard to healthcare? There is a lot of information for you that Sara and Thayer serve to you here, in terms you can understand. They both work for the Partnership to Improve Patient Care, or PIPC (a coalition). Sara Traigle van Geertruyden is the Executive Director at PIPC. Thayer Roberts is…
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For CME Information and Credit Visit: https://www.iridiumce.com/advancing-cystic-fibrosis-podcast-2 Summary This conversation focuses on advancing cystic fibrosis care by addressing caregiver burden, emphasizing patient-centered approaches, and discussing the importance of cultural competency in treatment. Experts share insights on the challenges f…
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#233 - Evan Scully: Running with Cystic Fibrosis, Olympic Running Coach, Running Tips & More
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In this Any Given Runday podcast episode, we chat with Evan Scully (@evan_runs on Instagram), a renowned coach, sports therapist, strength coach, acupuncturist, and nutritionist who has worked with over 200 Olympians. Despite living with cystic fibrosis (CF), Evan has achieved remarkable feats, such as claiming the record for 5k up to 13.1 miles ma…
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Advancing Cystic Fibrosis: Addressing Disparities, Challenging Perceptions, and Innovating Patient-Centered Care
CME credits: 1.00 Valid until: 11-10-2025 Claim your CME credit at https://reachmd.com/programs/cme/advancing-cystic-fibrosis-addressing-disparities-challenging-perceptions-and-innovating-patient-centered-care/24487/ Cystic Fibrosis (CF) care faces challenges from health disparities, limited access, and unintended bias, affecting patient outcomes. …
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In this panel session, three adults with CF - Rachel Alder, Jaelyn Cooper, MHA, and Abhijit Tirumala – as well as a mother of an adult son with CF, Alicia Maciel, MBA, share their personal experiences and insights navigating bias to develop productive partnerships with care teams and fellow community members so as to improve medical care and qualit…
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Sophie Grace Holmes was born with cystic fibrosis and was told she wouldn’t reach her teenage years. Despite the challenges, she has made it her mission to show what’s possible with a healthy lifestyle. Now a fitness coach and athlete, she has accomplished feats like climbing Mount Kilimanjaro, paddleboarding 80 miles from the Bahamas to Florida, a…
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20: Let me live, let me breathe: One man's journey with Cystic Fibrosis, a life-changing transplant, and living life to the full.
1:17:25
In this powerful episode of Tackle Talk Men’s Health, we bring you "Let me live, let me breathe: One man's journey with Cystic Fibrosis, a life-changing transplant, and living life to the full." Our guest Rhys, shares his deeply personal experience of growing up with cystic fibrosis, the physical and emotional challenges he faced, and the life-alte…
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Today's guest is Dylan Mortimer. Dylan has Cystic Fibrosis and is a two-time double lung transplant survivor, even while now training for the New York City Marathon. He admits that no one has perfect faith, but faith gets you through. Hear his testimony and story of healing hope that has taken him through some terrifying times in his life and healt…
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What does it take to find a cure for a rare disease like Cystic Fibrosis? In this episode, we sit down with Kate Hylan, Director of Development for the Cystic Fibrosis Foundation, to discuss the foundation's mission and the challenges of raising awareness for this orphan disease. We dive into the genetic nature of CF, its impact on patients, and th…
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Swapnil Hiremath, MD, MPH, FASN, joins Hiddo Heerspink, PhD, and Meg Jardine, MBBS, PhD, to discuss clinical trials presented at Kidney Week 2024, including notable findings from accepted submissions and late-breaking clinical trial sessions.由American Society of Nephrology
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Leading health care professionals Edwina A. Brown, MD, MBChB, Timothy Ray, CNN, CNN-NP, DNP, NP, and Monnie Wasse, MD, MPH, FASN, share their perspectives on evolving advances in dialysis treatments and patient care in the US and across the globe.由American Society of Nephrology
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Kidney Week 2024 on the go. Gentzon Hall, MD, PhD, FASN, Matthias Kretzler, MD, and Heather Reich, MD, PhD, discuss progress in glomerular disease research, emerging trends, and clinical challenges.由American Society of Nephrology
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Today's Episode This is part 4 of 8 for Dr. Raj's lecture about Acute Kidney Injury. About Dr. Raj Dr Raj is a quadruple board certified physician and associate professor at the University of Southern California. He was a co-host on the TNT series Chasing the Cure with Ann Curry, a regular on the TV Show The Doctors for the past 7 seasons and has a…
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Dr Pablo Sanchez, Lindsey Glaze, and members of our clinical pharmacy program visit the studio as we consider respiratory syncytial virus (RSV) and share updates on its management and prevention. We hope you can join us!由Dr Mike Patrick
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Ultimate Dublin Marathon Prep: Tips, Strategies, and Motivation for the Big Day in 2024! Join us in this comprehensive episode of the Any Given Runday Podcast as David McCarthy shares invaluable tips and strategies for runners preparing for the Dublin Marathon 2024 this Sunday. Learn about managing pre-race anxiety, optimal fueling and nutrition, e…
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Does the thought of Postural Orthostatic Tachycardia Syndrome make your heart race? Dr. Kelsey Klaas (Adolescent Medicine at Mayo Clinic) teaches us how to walk with patients and families through a POTS diagnosis. We master the art of orthostatic vitals, learn about the importance of teamwork in POTS management strategies, and touch on the stigma a…
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Are you looking to optimize your business IT and cybersecurity strategy? In this episode, we sit down with Rick Carpenter and Brian McCarthy of OpenTier Systems, an IT managed service provider that's been transforming businesses since 2006. We discuss their partnership, the unique IT solutions they provide, and how they help small businesses scale …
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You’ve probably heard all about Project 2025, the conservative plan to remake America … for 1950. Abdul reflects on the power of the federal government when it comes to health. Then he sits down with Sulma Arias and Aija Nemer-Aanerud with People’s Action Institute to dig into what Project 2025 would mean for health in America. This show would not …
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Life with CF is different for everyone. We have a lot of the same challenges, but we do grow with the disease differently. Heather Trammell, CF Mom to 7 year old Charlie is married to Christopher, (for 13 years now). Heather is a legal assistant in the compliance department at Credit Acceptance. Heather has so much CF Mom wisdom. I am glad to call …
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#234 Sean Kinane On: VO2 Max and Metabolic Testing, Marathon Training, Avoid Hitting the Wall and more
1:09:16
In this week's episode of the Any Given Runday Podcast, we explore the vital aspects of athletic performance with Sean Kinane of Health Matters. Discover the importance of VO2 max and metabolic testing, aerobic vs. anaerobic training zones, and the key role of balanced intensity to avoid overtraining. Gain insights into optimising marathon training…
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Today's Episode This is part 3 of 8 for Dr. Raj's lecture about Acute Kidney Injury. About Dr. Raj Dr Raj is a quadruple board certified physician and associate professor at the University of Southern California. He was a co-host on the TNT series Chasing the Cure with Ann Curry, a regular on the TV Show The Doctors for the past 7 seasons and has a…
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Pulmonary Hypertension for Advanced Practice Providers: Risk Stratification and Diagnosis to Enhance Quality of Care and Outcomes
CME credits: 1.00 Valid until: 17-10-2025 Claim your CME credit at https://reachmd.com/programs/cme/pulmonary-hypertension-for-advanced-practice-providers-risk-stratification-and-diagnosis-to-enhance-quality-of-care-and-outcomes/27146/ This program focuses on early symptom identification and timely diagnosis in patients with pulmonary hypertension …
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Pulmonary Hypertension for Advanced Practice Providers: Risk Stratification and Diagnosis to Enhance Quality of Care and Outcomes
Host: Martha Kingman, DNP, FNP-C Guest: Susanne McDevitt, DNP, ACNP-BC This program focuses on early symptom identification and timely diagnosis in patients with pulmonary hypertension (PH). Learn how appropriate risk stratification can facilitate the effective management of PH. Our experts also stress the importance of asking the right questions a…
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Therapeutic Strategies to Address Medical Trauma in the CF Community - Kate Yablonsky, LCSW (Video)
1:04:14
Medical trauma is experienced by many individuals with cystic fibrosis - both children and adults. Kate Yablonsky, LCSW, social worker at the Stanford Adult CF Center, reviews the signs and symptoms of medical trauma, and discusses specific therapeutic models that have been found to be helpful for people with CF and their loved ones to effectively …
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Therapeutic Strategies to Address Medical Trauma in the CF Community - Kate Yablonsky, LCSW (Audio)
1:04:14
Medical trauma is experienced by many individuals with cystic fibrosis - both children and adults. Kate Yablonsky, LCSW, social worker at the Stanford Adult CF Center, reviews the signs and symptoms of medical trauma, and discusses specific therapeutic models that have been found to be helpful for people with CF and their loved ones to effectively …
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Episode 24 - Liz King - Navigating Nutrition with Short Bowel Syndrome In this episode of Nutrition Pearls: the Podcast, co-hosts Melissa Talley and Nikki Misner speak with Liz King about nutrition management in the short bowel syndrome pediatric patient population. Liz King is a Registered Dietitian and board-certified nutrition support clinician …
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For CME Information and Credit Visit: https://www.iridiumce.com/advancing-cystic-fibrosis-podcast-1 Summary This program discusses advancements in cystic fibrosis (CF) therapies, focusing on both symptom management and genetic treatments. It highlights the importance of addressing health disparities and social determinants of health in CF care. The…
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How can esports build better gamers and better humans? In this episode, we sit down with Derek Rodner, Chief Gaming Officer of Uplink Studios, a youth-focused esports training and family entertainment center. Derek shares Uplink’s mission to combine gaming, STEM education, and philanthropy to create a positive impact on the community. From esports …
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The FDA recently issued a rule that requires all mammography reports include information about breast density. Abdul talks to Dr. Elise Desperito, the Breast Imaging Director at Memorial Sloan Kettering Cancer Center about what breast density is and its implications for breast cancer screening. To assess your breast cancer risk, Memorial Sloan Kett…
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CME credits: 0.25 Valid until: 15-10-2025 Claim your CME credit at https://reachmd.com/programs/cme/patient-centric-approaches-to-optimizing-outcomes-in-aad-case-review/26713/ Early diagnosis and management of agitation in Alzheimer’s disease (AAD) is part of a comprehensive treatment plan. How can you help caregivers recognize subtle signs of AAD …
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Guest: C. Brendan Montano, MD Guest: Anton P. Porsteinsson, MD Early diagnosis and management of agitation in Alzheimer’s disease (AAD) is part of a comprehensive treatment plan. How can you help caregivers recognize subtle signs of AAD to facility early treatment? Our experts have the answers you need!…
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We’re in Canada for this podcast. Canadian Advocate Beth Vanstone has two daughters, one with CF and she’s hosting this podcast with Laura Bonnell. Beth is introducing us to 32-year-old To Touraj Dehghan Manshadi who has a CF mutation that is common to Iran, but rare in Canada where he lives. You may be surprised to learn Canada does not have a rar…
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Sharing an episode of To See Each Other, a show that complicates the narrative about small town Americans in our most misunderstood, and often abandoned, communities. This season, host George Goehl travels to Lincoln County, Wisconsin to follow a small town battle for the last remaining public nursing home in the community. A conservative county bo…
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CME credits: 1.00 Valid until: 11-10-2025 Claim your CME credit at https://reachmd.com/programs/cme/bridging-distances-in-pah-bringing-best-practices-to-the-people-through-telemonitoring/24051/ Pulmonary Arterial Hypertension (PAH) requires a personalized, multidisciplinary approach, which is often lacking in remote regions due to limited access to…
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Advancing Cystic Fibrosis: Addressing Disparities, Challenging Perceptions, and Innovating Patient-Centered Care
Host: Denis Hadjiliadis, MD, MHS, PhD Guest: Gregory S. Sawicki, MD, MPH Guest: Alexandra Wilson, MS, RDN, CDE Guest: Susanna A. McColley, MD Cystic Fibrosis (CF) care faces challenges from health disparities, limited access, and unintended bias, affecting patient outcomes. This CME program aims to equip healthcare professionals with the skills nee…
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Host: Jean M. Elwing, MD Host: Nicholas Kolaitis, MD, MAS Guest: Katharine Clapham, MD Pulmonary Arterial Hypertension (PAH) requires a personalized, multidisciplinary approach, which is often lacking in remote regions due to limited access to specialized care and resources. The scarcity of specialized PH centers forces reliance on general practiti…
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For CME Information and Credit Visit: https://www.iridiumce.com/leveling-up-copd-care-podcast-4 Summary This conversation explores the challenges in implementing evidence-based recommendations for COPD care, including barriers such as lack of awareness, poor utilization of spirometry, inadequate symptom assessment, and low participation in pulmonar…
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Today's Episode This is part 2 of 8 for Dr. Raj's lecture about Acute Kidney Injury. About Dr. Raj Dr Raj is a quadruple board certified physician and associate professor at the University of Southern California. He was a co-host on the TNT series Chasing the Cure with Ann Curry, a regular on the TV Show The Doctors for the past 7 seasons and has a…
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For CME Information and Credit Visit: https://www.iridiumce.com/leveling-up-copd-care-podcast-3 Summary This conversation focuses on the critical gaps in COPD care, particularly in vaccination guideline adoption, delayed diagnosis, and the need for personalized approaches to treatment. Dr. Stephanie Christensen discusses the significant delays in d…
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In this panel session, three adults with CF - Rachel Alder, Jaelyn Cooper, MHA, and Abhijit Tirumala – as well as a mother of an adult son with CF, Alicia Maciel, MBA, share their personal experiences and insights navigating bias to develop productive partnerships with care teams and fellow community members so as to improve medical care and qualit…
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continue reading
