最佳Autism Science Foundation播客 (2024)

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The Importance of Model Systems 36:44

3d ago36:44

36:44

Animal models of autism, including cell based models, have received criticism because autism is a uniquely human condition so there is no value in studying it in a model like a mouse or a cell. On the other hand, model systems have been used for decades to develop therapies for a myraid of other conditions and disorders, and produced evidence-based…

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Episode 180: The ABA Roundtable: Centering Registered Behavior Technicians 54:58

6d ago54:58

54:58

Episode 180 explores the field of Applied Behavior Analysis (ABA) through the experiences of three Registered Behavior Technicians (RBTs) and their clinical director. They discuss their journeys into ABA, the challenges faced in accessing services, and the importance of RBTs in the field. The conversation culminates in the introduction of the ABA R…

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Episode 175: Autism in Serbia with Dr. Marija Čolić 1:30:27

7d ago1:30:27

1:30:27

In episode 175, Ben welcomes back Dr. Marija Čolić. Marija is an assistant professor of special education at the University of Hawaii at Manoa where she studies stigma in autistic people, those with developmental disabilities, and their caregivers as well as the parental experiences of autistic children. They discuss her research in Serbia for whic…

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Sir John Curtice on Election Insights, Exit Polls, and Data Storytelling 41:25

9d ago41:25

41:25

Join master data storyteller, Sam Knowles, for an enlightening conversation with Sir John Curtice, professor of politics at the University of Strathclyde and senior research fellow at the National Centre for Social Research. As we navigate 2024 which has been dubbed "the ultimate election year," Sir John shares his insights on polling accuracy, pol…

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20. Here's a Warrior: Traumatic Brain Injury ft. Erica Renee Walker 22:37

10d ago22:37

22:37

Send us a text This week's episode is with Erica Renee Walker, a TBI survivor and coach who is dedicated to raising awareness and helping others navigate life with brain injuries. In this episode, Erica opens up about her experience with traumatic brain injury (TBI), discussing how she sustained her injury, the hidden symptoms she manages, and how …

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Where is autism stigma the worst in the world? 17:02

11d ago17:02

17:02

This week, part 1 in cultural stigma around autism with Mia Kotikovski provides an overview of stigma, where it can come from across cultures and provides some examples of stigma in different countries. Different areas of the world are in different places in terms of their perceptions of autism, their needs for autism families, and what they percei…

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Episode 179: Reforming ABA: A Framework for Behavior Analysts 55:49

13d ago55:49

55:49

In this conversation, Ben Reiman hosts Hillary and Oswin to discuss their experiences and insights into neurodiversity, the evolution of Applied Behavior Analysis (ABA), and the importance of intersectionality in advocacy. Hillary and Oswin discuss their collaboration on a new project with Foundations for Divergent Minds and the significance of a p…

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Factors That Influence Heterogeity and How 34:00

18d ago34:00

34:00

Understanding factors that make each person with autism different has been a challenge, affecting diagnosis, interventions and the way we think about autism in general. Researchers at Istituto Italiano di Tecnologia, Rovereto, Italy, used computers to see how language, intellectual ability, motor and adaptive functioning grouped individuals into di…

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Episode 178: African-Centered Psychology with Dr. Jonathan Mathias Lassiter 1:19:41

20d ago1:19:41

1:19:41

In Episode 178, Dr. Jonathan Mathias Lassiter shares his journey, exploring his identity as a Black same-gender loving man, his experiences with sickle cell anemia, and his professional path as a psychologist and author. He discusses the impact of his heritage, the significance of sharecropping in his family's history, and the importance of underst…

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How can we unlock human behaviour with neuroscience and behavioural science? With Cristina de Balanzo, PhD, Founder of Walnut Unlimited 48:06

23d ago48:06

48:06

In this episode of the Data Malarkey podcast, we join master data storyteller Sam Knowles, in conversation with Cristina de Balanzo, PhD, Founder and Board Director at Walnut Unlimited, as she delves into the fusion of neuroscience, behavioural science, and strategic insights to unlock human behaviour. In this engaging discussion, Cristina shares p…

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Post-Pandemic Problems 14:36

25d ago14:36

14:36

A few years after the start of the pandemic, and a couple of years into “recovery”, scientists are still disentangeling the effects of COVID-19 lockdowns and exposure. For example, is there an uptick in autism screen positives when pregnant mothers fell ill? Were there diagnostic disparities based on co-morbid conditions? Did autistic people feel b…

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Episode 177 Susan Aglukark and The Arctic Rose Foundation 33:19

27d ago33:19

33:19

In Episode 177 Ben speaks with the legendary Inuk singer-songwriter Susan Aglukark. In her career spanning over 30 years, Susan Aglukark has received countless awards, including multiple Juno awards. She was appointed an Officer of the Order of Canada in 2004, the Governor General's Performing Arts Award for Lifetime Artistic Achievement, and many …

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Catching up with CANDID 10:31

1M ago10:31

10:31

In part 2 of the GI series in ASD, a new paper in the Journal of Nutrition and Gastroenterology describing the www.candidgi.com meeting is described. While sometimes doctors may be know-it-alls, sometimes they do not know-it-all and need experts to advise them, especially when they encounter individuals who may be hard to diagnose and treat. Those …

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How can we communicate numbers clearly so that people can better understand the choices they face in life? With Mike Ellicock, Founder & CEO of Plain Numbers 47:09

1M ago47:09

47:09

In this episode of the Data Malarkey podcast, master data storyteller Sam Knowles is joined by Mike Ellicock, Founder and Chief Executive of The Plain Numbers Project. Plain Numbers says of its purpose: “We enable clear communication of numbers everywhere so that people can better understand the choices they face in life.” This matters, because abo…

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Mysteries of the Microbiome

1M ago

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In the first of a two-part series on digestive health in ASD, Mia Kotikovski summarizes scientific information about what the complicated microbiome is, how it influences physical and psychiatric health, if it is altered in autism, and what causes it to be different in ASD. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8638778/ https://www.frontiers…

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How might we bring about gender equity in academic research? With Ylann Schemm, VP for Corporate Responsibility at Elsevier, and Executive Director of the Elsevier Foundation 49:29

2M ago49:29

49:29

In this episode of the Data Malarkey podcast, master data storyteller Sam Knowles is joined by Ylann Schemm, Vice President for Corporate Responsibility at the leading academic publisher, Elsevier, home to almost 3,000 academic journals, specialising in scientific, technical, and medical content. Elsevier describes itself as “an information analyti…

1
In updated U.S. autism bill, Congress calls for funding boost, expanded scope 5:35

2M ago5:35

5:35

The current Autism CARES Act sunsets in late September.

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More about the environmental influences in autism 15:38

2M ago15:38

15:38

New research points to a previously understudied but fascinating mechanism by which environmental factors may lead to autism: it’s called the “GABA/glutamate switch” which is a critical period in development when certain cells turn from turning on cell activity to turning them off. These environmental factors may delay this process leading to long …

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Episode 176: Religion, Spirituality, and Mental Health 1:31:33

2M ago1:31:33

1:31:33

In Episode 176, Ben speaks with Dr. Janise Parker, an Associate Professor of School Psychology at the William and Mary School of Education. In the first half of this episode, Dr. Parker discusses her work supporting early-career women of color in school mental health fields. The second half of the conversation discusses her pioneering research on t…

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Ep. 17: Biosensors and being fearless with Lin Tian 1:01:30

2M ago1:01:30

1:01:30

Tian discusses protein function and structure, and the historic city in China where she was born.

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From reductionism to dynamical systems: How two books influenced my thinking across 30 years of neuroscience 4:01

2M ago4:01

4:01

Nicole Rust describes her career-changing literary journey of joy, free will and the evolution of a field.

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Episode 174: Autistic and Black with Kala Allen Omeiza 1:14:24

2M ago1:14:24

1:14:24

In Episode 174, Ben chats with author, Kala Allen Omeiza. Kala Allen Omeiza is a prominent author and mental health advocate with a deep focus on the intersection of race, culture, and neurodiversity. She is particularly known for her work highlighting the experiences of Black autistic individuals. Her book "Autistic and Black: Our Experiences of G…

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Neuroscience needs a career path for software engineers 7:02

2M ago7:02

7:02

Few institutions have mechanisms for the type of long-term positions that would best benefit the science.

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Dealing with an ER visit 16:01

2M ago16:01

16:01

This week, special correspondent Mia Kotikovski discusses challenges in getting emergency care for those with autism, what doctors and hospitals can do to ease the stressors associated with places like the ER. This is a huge issue for families as many “simple” ER visits for their autistic family members can cause such stress it provokes severe reac…

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Episode 173: The Science of Learning Foreign Languages with Dr. Juliana Sequeira César de Oliveira 1:17:59

3M ago1:17:59

1:17:59

In Episode 173, Ben chats with Dr. Juliana Sequeira César de Oliveira, an assistant professor with the Munroe-Meyer Institute at the University of Nebraska Medical Centre about her doctoral research into the behavioral processes involved in learning foreign languages. Continuing Education Credits (https://www.cbiconsultants.com/shop) BACB: 1.5 Lear…

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Nonsense correlations and how to avoid them 6:13

3M ago6:13

6:13

This statistical error is common in systems neuroscience. Fortunately, straightforward methods can help you prevent it.

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Profound Autism: The first meaningful autism subgroup 28:07

3M ago28:07

28:07

Instead of grouping together people with autism based on traditional severity scores, what if groupings were done based on functional outcome? Would this help better understand the broad spectrum of autism and why some people with autism are so different than others? Researchers at the University of Minnesota led by Kyle Sterrett, together with UCL…

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19. Here's a Warrior: Tuberous Sclerosis Complex ft. Nic, Elizabeth, & Beckett Brown 25:54

3M ago25:54

25:54

Send us a text This week's episode is with Nic Brown, father of Beckett. After their 2-year-old son Beckett was diagnosed with Tuberous Sclerosis Complex, a rare genetic disorder, Nic and his wife Elizabeth became dedicated advocates for the cause. In this episode, Nic shares their long journey to obtain a diagnosis for Beckett and their challenges…

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Episode 172: ¿Quiénes somos? An Exploration of Latinidad 1:28:34

3M ago1:28:34

1:28:34

In Episode 172, Dras. Corina Jimenez-Gomez, Sarah Lechago, and Denice Rios discuss their research exploring the answer to the question: Who are we? in their article: An Exploratory Survey of Latinidad in Behavior Analysis published in the journal Behavior Analysis in Practice. Continuing Education Credits (https://www.cbiconsultants.com/shop) BACB:…

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Western Lifestyle Harms Your Gut: Tips to Improve 8:38

3M ago8:38

8:38

Rob Knight, Ph.D., delves into the incredible world of our gut microbiome. Knight underlines the crucial link between our diet, our gut, and our overall health. For parents, caregivers, and anyone interested in improving their health, this lecture provides valuable insights into how the foods we eat can be harnessed to nurture a healthier gut and, …

1
Western Lifestyle Harms Your Gut: Tips to Improve 8:38

3M ago8:38

8:38

Rob Knight, Ph.D., delves into the incredible world of our gut microbiome. Knight underlines the crucial link between our diet, our gut, and our overall health. For parents, caregivers, and anyone interested in improving their health, this lecture provides valuable insights into how the foods we eat can be harnessed to nurture a healthier gut and, …

1
Is it time to worry about brain chimeras? 9:26

3M ago9:26

9:26

Brains made of neurons from two species raise new concerns.

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What happens during sleep? 25:59

3M ago25:59

25:59

During sleep, your brain is still active. It is turning all those things you learned during the day into long term memories through connections between the thalamus, hippocampus and frontal cortex. What happens in Profound Autism? How does the brain work during sleep and how will this knowledge lead to better sleep in people? Are there intervention…

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Episode 171: Empowering Black Voices In Autism Research 1:30:47

3M ago1:30:47

1:30:47

In Episode 171, Ben speaks with Dr. Brian Boyd, William C. Friday Distinguished Professor of Education in the University of North Carolina School of Education, director of the UNC Frank Porter Graham Child Development Institute, and the President-Elect of the International Society for Autism Research, INSAR In June 2023, Dr. Boyd hosted the first i…

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Ep. 16: Male and female brains, Proust, and Catherine Dulac 1:21:06

3M ago1:21:06

1:21:06

The 2021 Breakthrough Prize winner explains how reading widely shaped her worldview, and discusses the vomeronasal organ.

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Martin Giurfa's concept of home 15:06

3M ago15:06

15:06

The insect-cognition researcher has done his work across continents, but Argentina is never far from his mind.

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On risk, uncertainty, and impact: how using data smarter is the fast track to success 54:31

3M ago54:31

54:31

Using data smarter is an attitude of mind. It’s characterised by those who choose to communicate simply, clearly, and effectively, by making sense of the signals and cutting out the noise. Above all, it’s about empathy, humanity, and appreciating the likely data tolerance of your audience. After our fifth collection of six great guests, it’s a wrap…

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18. Here's an Ally: Foundation to Fight H-ABC ft. Michele Levoir Sloan 20:02

3M ago20:02

20:02

Send us a text This week's episode is with Michele Levoir Sloan, co-founder of the Foundation To Fight H-ABC. Michele and her husband started the foundation in 2015 after their daughter was diagnosed with H-ABC. Since then, they have supported families affected by this condition worldwide, collaborated with numerous nonprofits, and worked alongside…

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What do Profound Autism Caregivers Need? 29:20

3M ago29:20

29:20

In part 1 of a 3 part series on Profound Autism, ASF interviews Emily Ferguson, PhD from @Stanford shares what she learned by asking parents and caregivers of Profound Autism “what do you need?” The short answer was: “There is No Help“. The responses were overwhelmingly focused on inclusion in any program or service, since … Continue reading "What …

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Episode 170: A Smiling Racism: Reflections on Racism In Canada 1:24:45

3M ago1:24:45

1:24:45

Canadian two-time Olympic Gold Medalist Donovan Bailey who was once hailed as the fastest man in the world said, in an interview with CTV news in 2020: "in Canada, it's racism with a smile" alluding to how racial inequity is masked by Canada's reputation of being the nicest people in the world. In Episode 170, Ben sits down with behavior analyst Da…

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Women are systematically under-cited in neuroscience. New tools can change that. 5:29

3M ago5:29

5:29

An omitted citation in a high-profile paper led us to examine our own practices and to help others adopt tools that promote citation diversity.

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Recurrence rates for families with an ASD child 14:36

3M ago14:36

14:36

What is the probability of having a future child with autism if you already have one or more? Families want to know. It helps preparation, planning, will hopefully improve early screening and supports. The Baby Siblings Research Consortium analyzed a bigger group of siblings compared to their 2011 numbers and found the recurrence pretty stable … Co…

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Episode 169: Smashing Disability Stigma with Caterina Rivera 52:02

3M ago52:02

52:02

In Episode 169, Ben chats with Catarina Rivera, founder of Blindish Latina, a platform smashing disability stigmas through storytelling and advocacy. As a Latiné woman who has lived with disability all her life, she brings a deep understanding of intersectionality to conversations surrounding disability. She wore hearing aids from a young age but d…

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How can we make the world better and fairer for all? With Professor Sir Simon Baron-Cohen from the University of Cambridge and the Autism Research Centre 53:48

4M ago53:48

53:48

In this episode of the Data Malarkey podcast, data storyteller Sam Knowles is joined by Sir Simon Baron-Cohen, Professor of Developmental Psychopathology at the University of Cambridge, where he also runs the Autism Research Centre. Simon has been working in the field of autism for approaching 40 years and is one of the world’s leading authorities …

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17. Here's an Ally: Patient Helpline + Patients Rising ft. Samantha Sauer 36:24

4M ago36:24

36:24

Send us a text This week's episode is with Samantha Sauer, a patient navigator and the Director of the Patient Helpline at Patients Rising. Patients Rising is an organization that aims to empower patients in America to advocate for reforms, placing them, alongside their doctors, in control of their healthcare choices. The Patient Helpline, a nonpro…

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Future of BRAIN Initiative funding remains unclear 4:11

4M ago4:11

4:11

As the U.S. Congress begins to discuss federal science funding for 2025, any plans to compensate for this year's cuts to the neuroscience program face an uphill battle.

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Alison Singer appears on @LifeWithTheSpectrum 19:56

4M ago19:56

19:56

In case you missed it, listen to Alison Singer with Gina Kavali on her podcast @LifeWiththeSpectrum. Alison talks about the importance of autism research and science in general, and how families can get involved.由Autism Science Foundation

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Episode 168: Tending the Garden: An Intimate Conversation with Dr. Trina Spencer 2:22:31

4M ago2:22:31

2:22:31

In Episode 168, Ben chats with Dr. Trina Spencer, the first female Director of the Juniper Garden's Children Centre, a part of the KU Life Span Institute, originally founded in the mid-1960s when citizens of Northeast Kansas City, Kansas joined with faculty from the University of Kansas to address concerns about the development and education of chi…

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At the end of the earth with Paul-Antoine Libourel 18:08

4M ago18:08

18:08

The French researcher's accomplishments working with chinstrap penguins in the Antarctic highlight the importance of recording sleep in the wild.

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Culturally sensitive care with Mia Kotikovski 14:13

4M ago14:13

14:13

On this week’s podcast, Mia Kotivkoski, founder of her own 5013c and recent graduate of Stony Brook University, reviews why understanding cultural and contextual factors influence not just an autism diagnosis but general health and outcomes of a broad group of people. They include immigrants, racial and ethnic differences, and socio-economic factor…

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