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FUMS 104 - Trauma and EBV as the Trigger for MS w/Tammy and Terry of Twins Coast 2 Coast

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Manage episode 326024093 series 2163836
内容由Kathy Reagan Young提供。所有播客内容(包括剧集、图形和播客描述)均由 Kathy Reagan Young 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

Identical twins Tamara Kahn and Terry Hord (née Harber) were born eight minutes apart and were both athletic as children. But they can now look back and see the fatigue and heat sensitivity they both experienced as early signs of the diagnosis to come - along with the trauma of losing their mother to cancer and the Epstein-Barr Virus that they contracted at the age of 15.

In their 20s they received identical MS diagnoses, but a history of voluntary charity work led them to create an MS patient advocacy hub called TwinsCoast2Coast. They aim to inspire, empower, support, and educate others about MS, and to simply tell their story, imperfections and all.

Despite the aggressive and progressive nature of MS for them both, they continue to create a support system and safe space for the newly diagnosed to land. As they say in this interview, "there is more to life than your disease - and you are not alone."

Full show notes and resources at https://fumsnow.com/fums104/

  continue reading

120集单集

Artwork
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Manage episode 326024093 series 2163836
内容由Kathy Reagan Young提供。所有播客内容(包括剧集、图形和播客描述)均由 Kathy Reagan Young 或其播客平台合作伙伴直接上传和提供。如果您认为有人在未经您许可的情况下使用您的受版权保护的作品,您可以按照此处概述的流程进行操作https://zh.player.fm/legal

Identical twins Tamara Kahn and Terry Hord (née Harber) were born eight minutes apart and were both athletic as children. But they can now look back and see the fatigue and heat sensitivity they both experienced as early signs of the diagnosis to come - along with the trauma of losing their mother to cancer and the Epstein-Barr Virus that they contracted at the age of 15.

In their 20s they received identical MS diagnoses, but a history of voluntary charity work led them to create an MS patient advocacy hub called TwinsCoast2Coast. They aim to inspire, empower, support, and educate others about MS, and to simply tell their story, imperfections and all.

Despite the aggressive and progressive nature of MS for them both, they continue to create a support system and safe space for the newly diagnosed to land. As they say in this interview, "there is more to life than your disease - and you are not alone."

Full show notes and resources at https://fumsnow.com/fums104/

  continue reading

120集单集

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